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sxu05310
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 10/23/2009 3:16 PM (GMT -7)   
I posted this also in the UC forum but you all might have a better idea of the situation.

So, I was diagnosed with sever ulcerative pancolitis in August after a colonoscopy (and a few months of serious constant bloody painful diarrhea).

First was Lialda. No progress.

Second was Prednisone. Some progress but no remission. Some reduced frequency and lessened pain.

Third was Imuran. Very little/no help so far.

I decided a while ago that I wanted to have ileostomy surgery seeing as how, even if i started seeing results, I'd have to be on the immune supressors for the forseeable future, and I hate the risk of cancer and side effects. I have a consult with a surgeon on Tuesday.

Now here is the curveball... my gastroenterologist is wondering now if I might have IBS in addition to colitis. So I am having a stool sample examined and I will possibly be having another colonoscopy.

If it turns out that I am also having IBS in addition to the colitis, should this prevent me from having the ileostomy surgery? I was really happy with my decision to have the surgery and I don't like the fact that something different could also be going on... anyones thoughts?

SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 10/23/2009 3:24 PM (GMT -7)   
I had Severe Ulcerative Colitis for 10 years before I had surgical removal. I certaintly wouldnt be so hasty to have it done. You should ask to try Mercaptopurine/6MP, Remicade, or Cyclosporin first.

damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 10/27/2009 12:28 AM (GMT -7)   
blush  hello and welcome to the ostomie forum!! I just had a look at ur post and you seem very confused. I have had my ileostomy for 8yrs now and for me it was the best and only outcome. But from what ur saying about the posibility of having ibs may change ur mind about the surgery. I would suggest you really talk it out with ur surgeon and also i agree that maybe you might try some medication first then think about the next step.I agree with SocalJohn about the med's to!! Hope this help's you some..
 
best wishes,
 
beverley..... turn
diagnosed with C in 2001.
colorectal anastamosis 2001.
surgery went horribly wrong,swab left inside,emergency surgery 2001.
total colectomy & ileostomy 2001.
surgical complication's-abcess,more surgery 2001.
more complication's-stitches come apart inside and ended up having more surgery and blood transfusion. 2001.
infection at lap site,another abcess. 2001.
i spent 12mths in Cabrini Private Hospital in Melbourne.
1993 diagnosed with endometriosis,then age 27yrs had radical hysterectomy then 2 mths later lost both ovaries.
2005. bi-lateral mastectomy,heart attack on the table,also contracted MRSA in coronary care unit,had staph for about 12mths. pic line for 6 mths for venus access,for daily antibiotics.
also suffer from chronic depression which is mostly caused by my lack of hormone's.
I AM CURRENTLY ON AVANZA FOR MY DEPRESSION!!!!!!!

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