hey i had my part one jpouch surg on sept 11, and yes! my stoma hurts, i told the dr and he said it might just be the muscles that are sore around it, i know wat u mean, sometimes its just perfect and i feel great and other times its just so sore i dont wanna move the bag at all.. i did notice when i eat a big meal and dont drink enough and the stool is kinda hard it hurts..if u find out what it is, lemme know
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
we will have our new baby boy January 25, 2010 :)
Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! Will have part two around November 11 if all goes well, dr said I will stay home from work for three months, oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...