hey guys i cant believe its been so long but i have felt so good since my surg that i havent had the time to get on here, just got back from a road trip which was great with no UC pain! =)
everything with part one surg went great, my huge scar is still healing, i had 37 staples and its about 10inches long, i had parts of the scar that kept gaping open and reopening, and its taking awhile to heal, but the only pain i have is sometimes, my stoma, or i guess it would be the skin around the stoma hurts, kinda like privey was sayin, it really feels like the actual stoma hurts esp when more formed stool comes out
but gosh this surg was a great idea!! i have never felt better other than my scar healing and the stoma, which i just found out my ileostomy takedown surg is scheduled for nov 9!
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
we will have our new baby boy January 25, 2010 :)
Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! Will have part two around November 11 if all goes well, dr said I will stay home from work for three months, oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...