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becellea74
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 10/29/2009 11:19 PM (GMT -7)   
i suffer from crohns ibs and fistulars but have had 2 bowel removals 9ft all in sml bowel no iliaam suffer with pain every day single mum on imuran 50 pred 20 nexiam tramadol if i was to get a bag witch would be the best option for me very scared but cant live this way anymore any advice nomatter how small will be appriciated ta x. confused

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/30/2009 8:40 AM (GMT -7)   
with crohns you usually get a permanent ileotsomy (cant spell today, lol) but you would feel much better afterwards! I didnt have crohns, i had UC, but alot of the people on here with crohns are med free now.
good luck
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/30/2009 11:09 AM (GMT -7)   
becellea74--sorry to hear the meds are not working shakehead I've been there! I, too, had to have some resections of the small intestine AND rectal fistulas...it's like a double whammy! I had a temporary ileo for almost 10 years and that did help keep the fistulas quiet but eventually, for me, the meds stopped working. It was at that point that I had a proctocolectomy...colon and rectum were removed...and I have been very thankful that things are going well. Now, I decided to have this surgery because my small intestine hadn't bothered me for about the same time as the ileo and I felt comfortable that things would be okay. Since, for Crohn's, surgery is not a cure, there is a small chance that **knock on wood** I could have issues, but I BELIEVE that I will be okay!!

How long has it been since you had a resection? Quality of life is very important and I believe that we have to weigh the pros and cons and do the right thing for us...I missed many years of my daughter's life with illness and have been making up for it ever since, but she doesn't mind!!

I hope you are able to get back to life...there are many of us with similar stories who'd be glad to answer any specific questions!
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