How much salt should an ileostomate take in per day?

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Date Joined Jan 2007
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   Posted 10/31/2009 7:05 PM (GMT -6)   

Because ileostomates lose so much fluid and electrolytes daily, how much salt should we be taking in per day?

How much potassium?

Do others of you without colons have your electrolytes checked by your doctor with periodic blood work? If so, how often?

Thanks, Rosemary

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Date Joined Feb 2006
Total Posts : 5698
   Posted 10/31/2009 8:37 PM (GMT -6)   

It's different for everyone.  You have to know your body and know the symptoms of dehydration.  I drink 20oz of coffee in the morning and then don't drink anything again until late afternoon.  I do consume a lot of fresh fruit which is full of water.  However, I know some ostomates who always have a bottle of water with them.  There is no one size fits all for hydration or salt intake.  Again you will need to determine what works best for you.

I don't have any special tests at my annual physical.


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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Date Joined Jan 2007
Total Posts : 4147
   Posted 10/31/2009 9:11 PM (GMT -6)   
ok thanks, rosemary

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Date Joined Jul 2006
Total Posts : 942
   Posted 11/2/2009 11:43 PM (GMT -6)   
Good question...

My dr had me on sodium pills and potassium pills. Both of these levels are critical to your health. I had to get my blood taken every 3-4 weeks to check my levels. Please talk to your Dr about this. My mother died because she tried to gauge herself. She was only 48. You have to be careful - listen to your body. When you are having leg and feet cramps, that is a sign of low electolytes. When your heart is racing, that is a sign of being too high. Research the symptoms. Most of all, listen to your body. You know when you feel "off." Ask your dr to set you up an account at your local lab so you can run there when needed to get blood taken. If you have health insurance, you can run to an urgent care office that has a lab and they can take blood there. If you ask them to label your blood work as STAT, your results will come back in less than 24 hours. I hope this helps..

Good luck and be careful.
Reversal 9/2009 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 11/3/2009 8:21 AM (GMT -6)   
Thanks Amey. My Primary Care Doc is clueless. I have to either get more assertive about having these levels checked or I need to get a new Primary Care.

Thanks, Rosemary
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