I had a proctocolectomy with ileostomy placed on Oct 13 due to crohns proctitis. I was in hospital for 15 days after due to UTI and high white blood cell counts, plus incision infection. I am now home and feeling very very weak. I know that my HGB was in the 7s post op. My question is what is normal as far as pain. I am having a few different areas of pain that concern me. The incisional pain is much improved while the pain I feel is very uncomfortable is deep in my pelvis almost as if its in front of my tailbone inside my abdomen. The other pain I have is my right upper rib cage area, hurts badly with deep breaths, etc. otherwise no fever, no cough no chills. I also am wondering what is normal for my anus, I know that the surgeon would be closing it from the inside, I now have multiple skin folds that are on the outside almost like hemmorroids??? Can anyone help
Thanks
JenG
Crohns since 1994, inflammatory arthritis, chronic ulcerative proctitis, endometriosis, hypothyroidism, depression
Two doses of Tysabri IV beginning of 2009, no longer on too many side effects, hospitalized for neuro problems, med helped though
Allergic to Remicade which helped me so much for about 5 years before developing allergy also allergic to Humira and Imuran
Taking Asacol and Aciphex, prempro, synthroid, xanax, Vicodin, elavil and cymbalta
Scheduled for ileostomy Oct 2009