oh thanks guys for all the advice!! we went to walmart tonight an had a little presurgery shopping spree, i bought the softes TP i could find, i bought some more equate flushable wipes, (i use these everytime i empty my bag, i even bring a zip lock bag of them when i am out in public), and we bought some diaper rash stuff, its 40% zinc oxide.. is that what i need? i read that calmoseptine has zinc oxide and menthol..i couldnt find anything like that, thinkin maybe i should go to walgreens? oh and we bought some generic imodium and gas x...hmm dont think im missing anything...
nutz- i would say considering the circumstances, yes i feel 100%, i feel very good, i mean when i sneeze or cough, my lower abdomin hurts bad, but other than that, i feel normal..oh and how my stoma hurts real bad when i eat.. i am not even going to worry about
it tho, since i only have one more bag change and i am done! oh and the prep the day before surg? nothing! i just dont eat the day before,my surg is monday, im not sure if that just means dont eat after midnight sunday night or dont eat anything sunday, im gonna ask, but the said just drink liquids the day before and i am all cleaned out...my surg is a 3pm so i will prob eat somethin sunday..
oh and since i have still been passing liquid from my butt every time i sit on the toilet, i am hoping the butt burn wont really be an issue, it might sound dumb, but i was thinking, maybe wiping harder and gettin ur behind "roughed up" for a few weeks might help with avoiding the BB, im gonna try it..right now iam using cheap, rough TP but after my surg, i am switching to the charmin ultrasoft.
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
we will have our new baby boy January 25, 2010 :)
Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...
ileostomy takedown scheduled for november 9