i had my loop ileostomy for 2 months now and my reversal is next week but the whole 2 months, about everytime i sit down to empty the bag, i actually have the urge to push like a regular bm and clear/white stuff comes out of my anus..not smelly at all, the nurse said it is the stuff my intestines make to help with digestion and it doesnt hurt or smell, its kinda cool and interesting acutally, i am going for my pouchogram tomorrow, they will give me an enema of barium type stuff and take an xray and make sure the pouch has no leaks, its kinda cool cause i dont have any prep, since all my poop goes in the bag..ahh what an interesting/exciting time in my life lol
my name is Isaac, 24 year old guy,Jehovah's witness UC since I was 17
remicade for two years, worked OK but got married and was told it could cause birth defects so I quit feb 08. my wife reminded me that i still had D most of the time while on remicade.
ALWAYS sick with something either mild or serious, all related to UC and the medication
Wanted to start a family Jan 09 so dr stopped 6mp, wife got preg in may so I am back on 6mp also lialda and 20 mg pred
we will have our new baby boy January 25, 2010 :)
Had first of to surgeres, sept 11, 2009! Had proctocolectomy with temp ielo, i will be med-free! oh and I'm getting laid off, last day of work is march 26, 2010, just enough time...
ileostomy takedown scheduled for november 9