what determines if your ileostomy is permanent or if you're able to have an ileostomy takedown?

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lasbutterfly
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Date Joined Nov 2007
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   Posted 11/6/2009 6:33 PM (GMT -7)   
I'm just wondering if someone can tell me, what determines if your ileostomy is permanent or if you're able to have an ileostomy takedown?
 
Butterfly

Equestrian Mom
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   Posted 11/6/2009 6:40 PM (GMT -7)   
a takedown is when your plumbing is reconnected after a j-pouch surgery and a permanent ileostomy is when the stoma is the "end" of your intestine.

I had a proctocolectomy, so my colon and rectum were removed, leaving me with a permanent end ileo:) I did have a "temporary" ileo for about 9 years prior where I still had all my plumbing and could have had it reversed and gone back to "normal" plumbing.

Does that help?

lasbutterfly
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Date Joined Nov 2007
Total Posts : 281
   Posted 11/6/2009 6:48 PM (GMT -7)   
I had a total colectomy in August 2007, and am soon having traditional ileostomy surgery.  How do you know if you're a candidate to get rid of your ileostomy?
 
butterfly

Equestrian Mom
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   Posted 11/6/2009 6:50 PM (GMT -7)   
was your small intestine connected to your rectum? Is that not working so you are having an ileo, or is there another problem?

lasbutterfly
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Date Joined Nov 2007
Total Posts : 281
   Posted 11/6/2009 6:53 PM (GMT -7)   
Yes, my small intestine was connected to my rectum because of the terrible constipation that I had. It stopped working and so did laxatives, hence I'm getting an ileostomy.

Equestrian Mom
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   Posted 11/6/2009 6:57 PM (GMT -7)   
Well I think it would depend on your body and what your doc thinks is best...are you apprehensive about an ileostomy?

lasbutterfly
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Date Joined Nov 2007
Total Posts : 281
   Posted 11/6/2009 7:07 PM (GMT -7)   
Yes, I'm very scared about an ileostomy. Let me tell you my entire story. I had ileostomy surgery in May, but my bowel movements did not start and 12 days later in June, my surgeon took me into emergency surgery. My entire small intestine was inflamed. He closed up my ileostomy and gave me a tube thru my abdomen which goes to a leg bag velcroed to my left leg. I came out of surgery with it, 3 jp drains, and a feeding tube. I was in the hospital for 52 long days.

I cannot find anyone on the internet that this has happened to. My surgeon is sending me to Cleveland Clinic to decide when I'll be ready for a traditional ileostomy. I am waiting for my health insurance to okay my appointment.

Equestrian Mom
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   Posted 11/7/2009 5:48 AM (GMT -7)   
Hang in there...you'll be in good hands at the Cleveland Clinic. They have seen it ALL and can usually find solutions when other docs are unable to help anymore. A traditional ileostomy isn't bad at all and won't hinder your lifestyle, at least mine hasn't!

Which CC will you be going to?

lasbutterfly
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Date Joined Nov 2007
Total Posts : 281
   Posted 11/7/2009 8:20 AM (GMT -7)   
I'll be going to Cleveland Clinic in Ft. Lauderdale, and Dr. Wexner is my colorectal surgeon. I live in northern Florida, so it's about 8 hours away.

Actually, an ileostomy is probable alot better than the type I have. I can't wear shorts or go swimming right now, or everything will be seen by all. I have a limited menu, too, or I get obstructions in my tube. My tube is only as big around as my pinky finger.

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 11/7/2009 5:46 PM (GMT -7)   
Butterfly~I know that is a long way to travel, but I am sure it will be worth it!! Let us know when you'll be going and I'll be thinking of you:) hang in there!
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