Because Crohn's can occur anywhere from the mouth to the other end, any type of pain or cramping would be a pretty good indicator that something is up (a flare up that is). Blood in the bag is good indicator as well... your doctor is correct. Sharp pains above the belly button is something my GI doc has said could also be an indicator of Crohn';s in the small intestine. It's such a tough disease! I wonder if having the ileostomy that I just had will stop my symptoms altogether, or if it is just buying me some more time. I guess I'll find out! GOod luck to you, and I hope this stubborn disease stays away for you!
10 years of Indeterminate Colitis, and total procto-colectomy with ileostomy on 10/16/09! SO far so good!