Did anybody have the surgery at UCSF?

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guila
Regular Member


Date Joined Dec 2008
Total Posts : 71
   Posted 11/19/2009 3:20 AM (GMT -7)   
I am considering Jpouch surgery at UCSF in the near future and would like to know if anybody had it there, (with Dr. Varma), and what your experiences there. Thanks,

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/19/2009 6:57 AM (GMT -7)   
There are a few recent jpouch grads from UCSF on www.j-pouch.org

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Megansmom
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 11/23/2009 2:05 PM (GMT -7)   
Hi Guila- My daughter had her surgery at UCSF. Dr. Varma was her surgeon. Her first surgery was in December 08, and had the 3 steps with the last step on June 1, 2009. Dr. Varma was great, my daughter really liked her. We were referred to Dr. Varma by my daughters GI doctors from UC Davis. We didn't have much time to do research her, other than logging onto the UCSF website to review her profile. My daughters surgery was an emergency and I am pleased that we had an excellent doctor. My daughter suffered with severe UC since August 07 and stopped responding to all medications. We had a doctor that told us that she would need to have a permanent ileostomy, but Dr. Varma didn't agree. She has so much knowledge/experience with Jpouch surgeries.
 
If you choose Dr. Varma you will  be in good hands. My daughter is 19 and is enjoying life again.
 
 

guila
Regular Member


Date Joined Dec 2008
Total Posts : 71
   Posted 11/24/2009 12:37 PM (GMT -7)   
Megansmom, Thanks for your post. It is great to hear from somebody who has been to the same surgeon. How was your daughter's life with the temporary ostomy? How is she doing now? What food restrictions? Any recommendations that you could think of before the surgery? (My email address is guih@earthlink.net in case you want to contact me directly. I would have put this info but don't know how to :) Thanks again a lot!

Megansmom
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 11/24/2009 1:45 PM (GMT -7)   
Guila, When my daughter woke up from surgery she was a little emotional about having the temporary ostomy, but was able to get use to it within a few days. She really liked the fact that she didn't have to keep running to the bathroom. Before we went home, UCSF gave us a list of foods to avoid along with a list of good foods. We stayed with these items for 6 weeks and started to introduce foods. She was able to eat all normal foods as she did before her illness.

She is doing great now. She is back in school and was able to go back to playing softball again. Before her UC she was very active in sports. It is nice as a parent to see her enjoying life as a teenager should.

She now has her Jpouch and is doing well. She is eating normal foods again.

Recommendations before sugery: Dr. Varma is pretty good about explaining the procedure, but doesn't give a lot of information unless you ask. May be that some patience really don't want the detail. Unfortunately, my daughters 1st surgery wasn't planned. They actually transported her from Sacrament to San Francisco to have surgery.

You can email her at mbarker27@gmail.com with any questions you may have for her. She does chat with people on a forum (not sure which one), she will be happy to answer questions you may have or if you just need to talk to someone, we didn't have this opportunity to do prior to surgery. Her experiences have helped a lot of people with their UC and decision towards the surgery. We had a family friend that struggled for years with UC and he and his wife created a website www.jpouch.net that site has great stories. If you go to this site look for Brevin as he also had Dr. Varma as a surgeon.

Hope all goes well for you.

guila
Regular Member


Date Joined Dec 2008
Total Posts : 71
   Posted 11/24/2009 5:10 PM (GMT -7)   
Thanks, Megansmom. I will give my son the email address.
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