Ok, def tell her to take the atvian, that will help alot! If she is worried about
leaking at night, have someone get her some waterproof pads, you can get them at babies r us, and she can sleep on them, i still do its like a secuirty blanket to me, so that way if i shoudl happen to leak, it goes on there, not the bed!
As for eating, for the first 6 weeks, she should eat a low residue diet. That means, no fresh fruits and veggies, nothing with skins, and no stringy meats (bbq, roastbeef) and drinks are fine, however some do go through faster than others! After those 6 weeks are up she can try introducing foods slowly, to see which are going to give her gas or troubles. Personally, i eat everythign but nuts, i just drink LOTS of water or something if i eat popcorn or lettuce or something.
for the first few weeks she may have a lot of gas and output that will slow down. She can try some gas-x, two in the am, two in the afternoon, and some immodium to slow it down.
Leaks, happen, and they suck, but its not the end of the world and once she gets the hang of it, it wont happen much, if at all.
I use the hollister newimage 2 piece with the velcro bottom.
And what i do is takea bath, using Dial soap, i had probelms with ivory, but the important thing is to not use anything with lotion or scent in that area.
Then i get out, take the old bag off, and apply the new one.
I dont use any skin preps or anything, that seems to cut my wear time ALOT.
I just put the paste on the wafer, i clean the area around the stoma, apply the new wafer, and the bag, then use the hair dryer on in to heat it, then press my hands down to make it stick good.
everyone has different ways to put their bags on though its kind of trial and error.
I dont know where sloan kettering is, so im not sure what area that is, but she might try another hosptial to talk to their ET or find a support group near her and contact them for some in person help.
hope she feels better!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-