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Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 11/21/2009 10:59 PM (GMT -6)   
Im just curious, pre surgery, how many of you had accidents with not being to hold it? I was lucky only had two and not in public.  But i was reading a thread about them and then i read that one of the reasons people dont want an ostomy becasue they are afraid it will leak, but they are having accidents all over. 
That doesnt make much sense to me
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 11/22/2009 6:56 AM (GMT -6)   
I had lots of accidents pre-surgery, and luckily all of them happened at home. I also had way too many close calls out in public. Talk about stressful!
In almost 4 years with an ostomy, I've never had an accident. yeah

I agree that being afraid of accidents with an ostomy doesn't make much sense to me either, but that's probably because I have one and know that it's nothing that I need to worry about.
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Regular Member

Date Joined Feb 2005
Total Posts : 421
   Posted 11/23/2009 1:06 AM (GMT -6)   
Im the queen of accidents. Honestly, I don't think there is a square kilometre left in Alberta that dosen't have my soiled panties. I've had accidents....standing in line, at the mall or shopping centers, more times than I can count in cars, at a concert, at a hockey game, at work lots, many, many times while driving to work....Accidents are actually why Im having the colostomy surgery tomorrow.
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Regular Member

Date Joined Jan 2008
Total Posts : 381
   Posted 11/23/2009 1:48 AM (GMT -6)   
I am with you Allison-- I have had so many accidents in public. I think most of them were unnoticed by anyone except for the time I had an accident while visiting my mother in the hospital. I have destroyed underwear left and right. smhair
I have had several bad leaks with my ostomy also. Only one was in public and no one noticed, but I had to bolt out of there quickly so avoid embarrassment.
So far with my jpouch, I have had no accidents.
Jackie, 44
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- REVERSAL:::::: October 23rd -YEAH!

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 11/23/2009 2:15 AM (GMT -6)   
It's hard to remember, having had an ostomy for the last 20 years!  But, one thing I do remember.....I knew where EVER bathroom was within a 5 minute distance.   And, if there wasn't a bathroom within a reasonable amount of time....I usually passed on the fun!!!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 11/23/2009 6:26 AM (GMT -6)   
I also know where every bathroom is in town! smilewinkgrin

Good luck with your surgery tomorrow! I'm praying that everything goes perfectly!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 11/23/2009 7:06 AM (GMT -6)   
I had several but not really in public and luckily I had a small child, so I already knew where ALL the bathrooms were!!!

Wouldn't change anything with my life now, tho, my ostomy has given me my LIFE back:)

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 11/23/2009 9:42 AM (GMT -6)   
I've had lots of accidents before the surgery. I could truly write a book on amazing accidents. They are getting funnier the further I get from them. Some are still gross to share with "outsiders" Finally think life is better with this ileostomy. Have been hoping I would feel like others, who I read, say that all the time.

Now the experienced ostomate of 3 & 1/2 months, I have new challenges, leaks!! They aren't as big or awful as the alternative. Happy to report they are becoming less frequent and truly I couldn't have lived thru this much without everyone here. I am getting better at reading the "time to change" signs.

I am still on my "finding the right appliance" adventure. Guess no one here uses Cymed but thinking about that one. Seriously trying them all. Have had calls from the companies to see how I liked their stuff and given them my 2 cents worth.

I think leaks is the lease thing to worry about with ostomy. How about blockages, full bags and skin problems. Oh sorry not trying to discourage people.

I don't have to visit every bathroom in every place I go now. Yeah!! Life is getting better. Now if I could get rid of the arthritis in feet, hands, and back.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

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