Welcome to Healing Well! I'm glad you found us.
Wow, you sure have been through a lot! I'm sorry to hear that you're having problems with leaks. Have you tried a convex wafer with an Eakin Seal? I had a temporary ostomy last summer after my small intestine perforated. The stoma pointed downward causing daily leaks, until I found a system that worked for me. I used a Coloplast Assura Extended Wear convex wafer with an Eakin Seal, which gave me about
4 days wear time. Luckily, that ostomy was only temporary. My permanent one sticks out just fine.
I have heard of people having their stomas "fixed" so they function better. If this continues to be a problem, is that option for you?
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.