Thank you everyone.
Summerstorm, I think the hope is, is that someday they can reconnect her. But it confuses me because when she had the colectomy done, the surgeon said it would be unlikely. She also said that if they were going to try to reconnect her they wouldn't do it until she was finished growing.
Sami's GI dr that did the scopes said the condition it is in they won't be able to reconnect her, but want to try the cortienema to see if it will help reduce the inflammation. She has been on the cortienema before and it stopped the bleeding, but when she is done the course of the med it starts back up again. I don't know if doing all this is going to do more harm than good?
She has had the diagnoses of the disease for 2 yrs now, but I still have so much to learn. It gets confusing sometimes.
Mom to 5 special children
14yr old- GAD, PTSD, ODD, LD
12 yr old- Crohn's Disease-total Colectomy Feb 09, PTSD, Dystymia, JRA, Asthma
11 yr old- Globally Developmentally Delayed, Low Cognitive Functioning, PTSD
10 yr old(almost)- Epilepsy, Unspecified Social/Emotional Disorder, PTSD, LD
32mth old-Bright and Happy