How often do you urinate per day?
I ask that because frequency is one of the most misunderstood concepts for people contemplating surgery. Yes, your frequency will be higher but there will be no urgency and you often don't know your pouch needs emptying until you go to pee. To empty the pouch is a quick as urinating.
I have no idea what my frequency is but if I had to guess I would say in the 6-8 ranger per day; sometimes more depending upon what I eat. I eat a lot of fresh fruits and vegetables so my frequency could be lower if I changed my diet but I am not about to do that. If you are looking to go 1x per day that is not going to happen with any of the surgery choices. It's highly unrealistic and I have a really hard time believing that anyone with a jpouch is going only 1x per day. The jpouch is only 9-12" of storage capacity and that replaces 6ft. of colon.
I am a long distance hiker (100-200 miles), I do international hikes, I backpack, and I work out daily at the gym. If frequency was an issue I wouldn't be able to participate in these activities. Really, my life is 150% better than when I had UC.
You can meet more jpouchers at www.j-pouch.org and get their feedback but I would not pursue this option unless you altered your expectations.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free