Is this normal??

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Regular Member

Date Joined Oct 2009
Total Posts : 453
   Posted 11/28/2009 8:20 PM (GMT -6)   
I had my ileostomy in late June due to UC which was a result of taking Augmentin for too long which resulted in c-diff and then in UC that went to organ shut down. It was an emergency ileo and probably permanent but life saving. Ever since I have had this ileo I feel like I need to have a BM, kind of like a turd is setting on my rectum and when I have to pee it is worse. This morning I went to the bathroom and I actually had some stool colored liquid come out of my rectum and it has been bothersome all day with the feeling that I have to go poop. My ostomy has been fine and working like it always does but this other stuff really concerns me. Of course it is the weekend and all the doc are off so I can't call anyone. Has anyone else had this experience? I checked on C3Life and they all said it was normal to have the sensation for up to a year but to go that long without anything coming out to this morning 5 months seems strange to me. I did have the mucous discharge for about a month after the surgery which I know is normal but is this normal?

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 11/28/2009 11:35 PM (GMT -6)   
Yep, it's normal, it's probably just mucous. The sensation you're getting is called 'Phantom Rectal Sydnrome'. Just like when people lose a limb but can still feel it itch, so our bodies have to get used to not being able to go to the loo in the 'normal' way. It's perfectly normal to happen this far out of surgery as well.
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums


I'm not a complete idiot - some parts of me are missing!

Regular Member

Date Joined Oct 2009
Total Posts : 453
   Posted 11/29/2009 4:08 PM (GMT -6)   
Thanks Shaz I've heard that it is normal but when it gets worse somedays it makes we wonder. I told my husband that it is the most uncomfortable feeling walking around feeling like you have to poop all the time. Can't wait until it is gone.

Thanks again.

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 11/30/2009 3:34 PM (GMT -6)   
For me All the walking seems to have helped it calm down faster. I hate that feeling. I have to take big breaths and remind my body it's just feeling past pain memories.

Hope you figure out how to get past it. Seems like checking with doc couldn't hurt.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

Regular Member

Date Joined Jul 2009
Total Posts : 149
   Posted 11/30/2009 8:41 PM (GMT -6)   
I'm 8 weeks post jpouch surgery and I get the sensation to poop daily and mucous comes out most of the time. I was also told this is normal and can last up until my reversal!
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009

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