Lizzie, I've been working full-time for the past month, but have been taking lots of time off because I get so tired, and also have to leave to flush out my tube (which my husband has to help me with.) I have had to take lots of leave without pay. Today, I asked my surgeon if he would write a letter for me to work part-time and he agreed. Now, I can work part-time and get paid as full-time because of our agency's sick leave pool.
I got a copy of a letter this weekend from Dr. Wexner that he wrote to my surgeon. He thanked my surgeon for sending me to him for a consultation. He also told him of the tests that I have to perform, my appointment in March, and possible surgery in June. What scared me, is he said that he had discussed the risks of my upcoming surgery with my husband and me, but he didn't and unfortunately, I didn't think to ask. I guess that I'll have to ask in March.
I am so full of what ifs that it's invading my sleep and daylife, too. Tomorrow, I have an appointment with my counselor again and it is the highlight of my week. I can go to his office and tell him how I really feel and cry without putting up a happy front like I tend to do with my co-workers. My husband, my counselor, and this forum have kept me sane or I would have no one to speak with. I don't tell my problems to alot of people (other than this forum).. Thankfully...
I hope that you get some answers at Cleveland Clinic, and that they don't break your heart. Every doctor's appointment has started to chip away at my positiveness. It's difficult to continue repeatedly going through all of our tragic news.