I wish we lived closer as well.....I cannot imagine what you are going through and how hard each day it must be for you to not think about the negatives that have happened and to have an emmense fear for the hospital. I pass the one I have been in with each surgery on a weekly basis and it makes me cringe. I know how you feel sweetie. I agree with you that it is just as hard for the husbands to eatch us go though the trials we have and they are amazing. "In sickness and in health"...sure got work out of this vow.
It is hard in counseling, but I have found that imine, even though he doesnt understand, is open to listening and sometimes speaking the words to someone besides your husband or friends can be so beneficial. So open up....let your counselor be thre for you and guide you through these months coming ahead. My What If's drag through my mind every night, leep me up, and break me down...but with time my counselor said I will become desensitized to the worst case scenarios and be ok with what "could" happen. I wish I could be closer for you and if I had more time off and even had time to visit I would. Please know we are all here for you...every day. No one can understand you like we do and you need to get your feelings out to those who can help. We care about you so much. Let me know how this week is going....praying for your peace of mind, rest, health, and healing.
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13
Re-admitted with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)
Retracted stoma-infection/skin breakdown.
Ileostomy Reversal- Oct 8, 2009. Ileus/Dehydration 10/13. New rectal dysynergia-biofeedback-11-19
"The Greatest Healing Therapy is Friendship and Love"