Part 2 of 3 jpouch surgery done, but had a problem

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SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 12/4/2009 3:12 PM (GMT -7)   
I had my surgery done yesterday. It went much better than the last surgery because I was in much better health. However there was a problem that may turn in to a big deal. My rectum was still inflamed from the colitis. The surgeon completed the surgery but told me there is a chance that won't heal properly. If that happens, I'll end up with a permanent ileostomy. Please pray for me that that is not the case.

I'll probably be in the hospital for another 5-7 days. I'm still in a lot of pain, but it is lessening. I just have to keep on the pain pump.

Love you guys,
John

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/4/2009 3:15 PM (GMT -7)   
I strongly encourge you to get a second opinion. There are some very experienced CR surgeons in Los Angeles. I have never heard of this reason to go to a perm ileo. I would not stop until you got a better answer.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 12/4/2009 3:17 PM (GMT -7)   
That sounds like a very wise idea. I will do that.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/4/2009 8:09 PM (GMT -7)   
SocalJohn~I definitely agree with suebear...that doesn't sound right. Please keep us posted:)

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 12/6/2009 11:30 AM (GMT -7)   
John - As a fellow 3-stepper coming up on surgery #2 I'm wondering if there were any indications that you now know were signs of UC inflammation. I have what I think is the standard mucus discharge from my stump and so far just once have had blood with the mucus (last week) and it has gone away. I'm wondering if this is something that I should be concerned about and have addressed before surgery #2 on Jan 4. I agree with Suebear and Ohio76 that it doesn't make sense to me but in the interest of having everything go as smoothly as possible would like additional info. Please let us know what you find out.
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 12/6/2009 12:41 PM (GMT -7)   
Ducridr-there was lots of warnng. about a month after the first surgery I started having substantial pain and bleeding from the rectum. I spoke to my surgeon at that time. He didn't seem concerned but presribed me a cort enema. That didn't get things under control, bilut I fond out it wasn't uncommon to get proctitis after the first surgery and that it would go away after the second surgery. I think the problembis that everyone underestimated how bad the inflamation was. Anyways it's done now and I feel like I'm healing very well. I doubt there will be a problem for the future surgery.

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 12/6/2009 6:14 PM (GMT -7)   
John - Thanks so much for the information. That calms my fears a bit. I'm over 3 months out from surgery #1 and this was the first blood I'd seen. I really felt the need to push so I did and that's when I had blood and mucus. It hasn't happened since so hopefully it was just a random moment that won't happen again and wasn't a sign of increased inflammation. *fingers crossed* I'm glad to hear that you seem to be healing well and don't anticipate a problem for the next surgery.
Ducridr - 35 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

First of 3 surgery's to get a j-pouch on 8/21/2009!!!


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 12/6/2009 6:19 PM (GMT -7)   
I will pray for you John! I hope that you are discharged soon and are able to complete your surgeries as planned!
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009

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