Can I have some advice following Illeostomy reversal 2 weeks ago

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New Member

Date Joined Dec 2009
Total Posts : 2
   Posted 12/5/2009 3:43 PM (GMT -6)   
I am new to this site, and have spent some time reading before my surgery and am hoping you will be able to offer me some advice and prehaps some re-assurance that this massive decision i have made is going to be ok!!
Ok so i have had CD since i was 16 and several resection surgeries, Nearly 11 years ago i had my illeostomy formed (they kindly left my large bowel inside).
On the 23rd of November i had my reversal surgery, and after a week in hospital am home now.
The only advice i had from the surgeon was that i could eat and drink as normal, somehow i am thinking he didnt really mean a curry and Vodka!! tongue
So 2 weeks in am starting to worry and panic slightly that i am stuck like this with the going to the loo about 10-13 times a day with much pain and the stools are very getting worried this is not going to let up and i may have made a mistake!!
I work full time and have told my work i would be off for a max of 3 months, have i underestimated?
Any advice or comments are very very welcome..

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 12/7/2009 7:54 AM (GMT -6)   
I've always been given instructions for Low Residue Diet for the first 6 weeks. You can google that term and print it out:)

Your frequency will be high in the beginning. Your body needs to re-learn how to work...but you can use the BRAT diet (bananas, rice, applesauce and toast) to thicken and there is immodium and metamucil (or it's UK equivalent).

I was able to go back to work after I had one of my ileos reversed in 6 i don't think 3 months is underestimated. You just need to figure out what is going to help your body right now and then introduce other foods in steps.

let us know if you have any questions!

New Member

Date Joined Dec 2009
Total Posts : 2
   Posted 12/7/2009 8:13 AM (GMT -6)   


Thank you so much for replying, i really appreciate it.

Its seems then i might be a little more normal than i was suspecting. I have been following a Low Res diet as I suspected (after other surgeries) that this was the best thing to do.

I am also injecting 0.25ml of Octreotide 3 x times daily but now and not sure if this is the best thing, as was originally for the high output illeostomy but this is what the surgeon has advised to keep on with.....I am in the process of checking with my clinical consultant if this all sounds normal as get the impression the surgeon does his snipping and stitching and is not really all that interested in the rest. smilewinkgrin

I suppose 2 weeks really is very early days still, perhaps i need to be a more patient, just feeling a bit out on a limb and scared....really kind of you to reply, thank you.


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