Posted 6/26/2009 8:08 PM (GMT -7)
Honey, me and you could be twins. LOL I am the mother to 4 kids. All were big babies, 9lbs, 9lbs 2oz., 9lbs. 8oz., and 10lbs 13oz. The 2nd one, the 10lb 13oz really messed up my pelvic floor...I could not pee for days after he was born, I had to be cathed. In 2005, my bladder, rectum, and uterus all fell. My bladder was literally hanging out a little, it looked like a bouncy ball hanging right at the edge of my vaginal opening. OMG, I about died because I never heard of this happening before. I ran to the doctor as fast as I could because I didn't know what was happening. He said it was a pelvic prolapse and it was from having such big babies vaginally. Well, he sent me to a urologist and another gynecologist and she said I needed a hysterectomy, a bladder sling, and to have my vagina lifted. I was like, ok, lets do it.
Well, I have always suffered from constipation, but after that surgery, I really learned the meaning of being constipated. I could not push down to poop. I would lean back, forward, squat, lean side to side, push down on my belly, etc. Nothing worked to help me get the poop out. I went back and forth between the gyn and uro doctors and they had no idea what the problem could be and sent me to a gastro doc. He ordered a colonoscopy and ct scan, told me to take more fiber with 4 tablespoons of mineral oil everyday. Needless to say, the tests came back normal and the fiber made my stool like a brick and I still couldn't poop. So, I went to another doctor, a doctor out of network, a urogynecologist because he came highly recommended.
He tells me I have a significant rectocele, a cystocele, and the bladder sling had eroded through the urethra and I needed another surgery. He was almost positive that I would be able to have a bowel movement when the rectum was up in the normal positon. So, I paid $6000.00 to have a sacralcolopopexy, all of our savings. So, I go home, 2 weeks went by with no bowel movement. He calls in a script for miralax , so, 3 days after taking 15 doses of miralax, I feel bubbly in the stomach, and I go to the restroom....GUESS WHAT??? I couldn't push at all. No matter how I turned my body, how much I pushed, how far I leaned back....nothing helped. I used suppositories and was eventually forced to disimpact myself. It was very painful too because I had horrible spincter spasms from the surgery. I just did not want to go to the ER and have them disimpact me. UH HUH, no way! I go for my follow up and I am very upset about not being able to poop. He just looks at me like I am deranged or something and tells me to go to another gastro doc.
So, now, 3 years later, I have been to numerous doctors and they all agree on one thing and that is that I do have colonic inertia...But, one doctor thinks I need to have a total colectomy, where they remove the colon and attatch the small intestine to the rectum...I was terrifed when he said that because I have never heard of this surgery. Then a month ago, I went to yet another colorectal doctor and he said I had mild intussesseption (sp?) of the rectum and anismus, which is where the anal muscle that holds the poop in, will not relax to let the poop out. He said removing the colon will not not help me get the poop out. So, on July 17th, I am going to be sedated and have a botox injection directly into the anal muscle, hopefully to relax it. And if this does not work, then I will have to get a temporary illestomy to allow the muscle time to rest. As far as my paralyzed colon, I have no idea what to do about it. I am terrified to have it removed.
I use 100 or more suppositories a week, numerous enemas, warm and saline, and spend 3 to 6 hours a day on the toilet unless I don't take miralax , and then I can go 3 weeks or more with no bm. My transit marker test on day 5 showed 15 markers in the ascending colon and about 10 markers in the transverse colon. My doctor said this shows an extremely slow colon. If you feel like the miralax messed up your test, ask the doctor if you can repeat it. Miralax builds up in my system too. I hope I haven't bored you to death, I just want you to know that you are not alone in this because I know how alone I felt. :)