wish i had been given this along time ago!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 12/26/2009 7:08 AM (GMT -6)   
Hi, Since having my retracted ileo I suffer frequent bout of sore broken down irritated skin to the extent that i can't hardly touch the skin round the hole let alone get a pouch on it, but thanks to a duty surgeon in A&E who went out of his way to get me something to help deal with this, who came back with 4 syringes of this Gel called INSTILLAGEL (the gel is normally used for men that need to be catherterised and has a numbiing agent in it ) he said this would stop the pain when having to clean the area when it is so sore and irritated and boy was he right!!!!!!
i used it the other night after trying to clean the area round the stoma the hole was like a volcano just wouldn,t stop errupting! so by the time it stopped the skin was soooo sore i put a squirt of the gel on the area and within seconds it was numb and i was then able to to clean, get a pouch on with no pain or discomfort it stayed numb for at least an hour afterwards this is the best thing by far and i so wish i had met this surgeon and been given this gel at the beginning of the year and not had to suffer all this time with skin issues. So i just thought i'd share this with you hope and can help some of you out there that suffer with irritated skin. Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 12/27/2009 1:10 PM (GMT -6)   
That is wonderful news, Bev! Thanks for sharing the info with us! :-)

Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 25, 2018 6:23 AM (GMT -6)
There are a total of 2,974,926 posts in 326,228 threads.
View Active Threads

Who's Online
This forum has 161317 registered members. Please welcome our newest member, chris fletcher.
353 Guest(s), 10 Registered Member(s) are currently online.  Details
Noluck, Blake Letras, suppwife, JNF, Bull101, johncl, dbwilco, OriolCarol, olsky, iPoop