Hi Jenise - here are my history stats:
April 6, 1999 - rectal malignant tumor diagnosed.
April 29, 1999 - colon resection/cancer surgery, 90% of sigmoid removed, 15 inches of colon removed, temporary colostomy, gallbladder removed (pre-op cat scan revealed hundreds of gallstones).
June 26, 1999 - temporary colostomy reversal.
This is about
the time when all the "fun" began for me.
Having a temporary colostomy wasn't really that bad. I managed quite fine actually, only had one or two mishaps, had my bag fill completely 4 times in a row with army green stool (from eating a bowl full of blueberries, never did that again!), etc.
2 or 3 weeks after my takedown is when I learned about
low residue diets.
Jenise - go easy on that green light. If I were in your shoes I would introduce foods not on a low residue diet - slowly. Ever so slowly. Don't just jump into a high fiber diet! But wouldn't that be something if you could eat a normal diet. I so wish you can after all this.
Yes I am all different down there, inside, sometimes I get those rectal pains or spasms that people mention on these boards. I hate when they happen. If I am home I hurry along the bm's, inducing them almost, with hot tea. I just sip about
3 or 4 cups, the caffeine encourages more bm's and I get the whole awful phase over with.
I seem to go thru about
4 stool stages too - 1. formed, easily passed, no mess (my favorite, of course). 2. semi-formed, getting messy. 3. putty like stool (my least favorite), this stage can go on for days and days. 4. all out diarrhea. If I am home and I experience D, I sometimes just let my body do its own thing now. I try not to stop it because after the D is over, I do feel better. And I am guaranteed an almost normal day the next day. Woohoo.
Now one thing I did faithfully for a while (oh a year or two) was weekly enemas. I was desperate on a vacation with my family. After my children and husband went to sleep I did a Fleet's enema. I had been stuck in that putty stage and missing all the vacation fun. I felt just great for the rest of the trip. A clean out really turned things around for me. I asked my doctor later if I do weekly enemas. She said sure, just go into one as fully hydrated as possible. And eat a healthy diet right away (unlike you do for procedure preps and liquid diets). They did help me for a long time, but a few seemed to last much longer than an hour. One for 12.
Now I just manage by following the LRD, keeping my stress level as low as possible (I've perfected the word no in as a polite way as possible to get out of social functions I know I cannot do!), taking Colace each night, and a Probiotic pill (found in the organic chilled food section at Krogers).
I feel like a walking and talking puzzle. If all my puzzle pieces are in place, I do okay. Not great, not bad. If one is out of whack, I am a major mess.
I've worn out the insides of all 3 of our toilets here at our house. At least twice. LOL I tell my husband if we ever have a house built again, I want two toilet drains to the curb, not one, and at least 10 toilets (we can stash them all over the place, master bathroom could have 2, laundry room could have 1, one could go down by the furnace, etc.). Of course I am joking, he thinks but my gosh, if we ever won the lotto, I will be the whacky woman with a dozen toilets. That would be sweet, having my own where no one would ever knock on the door and if one was out of order I'd have another at my disposal.
The things you take for granted before colon surgeries. If anyone told me my life would revolve around a bathroom, I would have told them they were just crazy!
But sadly, this is my life but I did survive cancer.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening
Post Edited (Marsky) : 1/12/2010 6:07:59 PM (GMT-7)