It's ok about
me being confused, it is hard to explain some things over the net... and no you're not being rude :p I really do appreciate all the comments as you's are all on here in your own time helping me out! Which I truly truly do appreciate! I just feel bad bothering everyone with these questions! In short: I'm going in to see my Stoma Therapy Nurse on Friday again to rediscuss the stoma location and everything else...
I basically just don't want to go in to the surgery doubting my decision so want to make sure I make the right decision. I spoke to her (the nurse) on the phone and she said that she doesn't generally have the stoma under the belt line due to rubbing, and based on where I have it located, while she can't say it won't decrease the bags capacity, she is thinking it will be ok. She said another alternative would be for me to have it above the belly button, that way it wouldn't be anywhere near my belt. I think that's way too high and probably would feel more (socially) uncomfortable with it there then if it was below my bellybutton. But anyway, she's guna discuss it with me on Friday.
So damagedgoods, you said that "the best place to have ur stoma is about
the same spot as ur hip bone and about
3cms going in towards ur belly button, but about
1.5 to 2cms down from ur button. Basically you need just the very top of ur bag to show above ur belt line and that way the poo will fall into ur bag so much better."
Maybe I have a weird shaped body or something (disproportionate? :p ), but my stoma (or should I say black permanent marker dot) is basically inline with my hipbone. If I drew a line from the outermost part of my hipbones across my stomach it would go through the top part of my black dot. But the problem as you said is the whole being too high in comparison to where my belt is. Is it possible that my stoma is in the 'normal' spot but its just that I wear my belt way too low??
Thanks for the drawing Shaz, it actually did help explain what you's were saying! Was the small dot on the stomach the belly button? As in to show the stoma and bag in relation to the belly button?
NASCARon, does the bottom of your bag go near your belt line? If so do you have any problems with it being there too? (I was assuming it must be near the belt line or end before the belt line as it's only 1.3cm (ish) below your bellybutton (compared to my 2.5-3cm below my bellybutton).
I wonder how low the surgeon can physically put the stoma… hmmm
Male, 22, diagnosed with Crohn's at 13.
, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
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