On the topic of weight gain/loss....
everyone's situation is unique, as all of you have said; this is what happened to me.
I got my ileo to shut down my large bowel while I healed from an infection. I lost 35 lbs over about 5 weeks but almost 4 of them were in the hospital and I was on fluids only. That weight loss put me back into a healthy range; I had gotten a bit piggy over time and needed to lose it. When I finally went home, I found that I had lost all sense of taste! Liquids tasted like muddy water and solids (toast) tasted like paper. It was summer at the time so I survived on ice cream and chicken noodle soup. The ice cream needed to be Hagen Das of course :) and I was able to over-season the soup. The loss of taste freaked me out despite being told that it would come back eventually. But it did come back, first with pasta and then gradually with everything else.
For the first 8 weeks with the ileo, I was able to eat bazillions of calories each day and not gain weight. I was hungry all the time and enjoyed eating. Then, without warning, I gained 10 lbs overnight !! Literally. Ok, maybe over 3 days but still!! My tummy grew or swelled up by a few inches and was very sore. It was not a blockage because the stoma was still doing its thing. After a few more days the weight did not go down. I had a routine follow up with the surgeon and he said it was normal for the bowels to adjust and suddenly start retaining/storing calories. The mistake I made then was to give up and accept the weight. By the time I had the resection surgery in Jan/10, I had gained back 17lbs.
In the week leading up to the resection surgery, I cut back on calories and switched to clear soups + stopped eating most carbs. I was in the hospital for 10 days because there was a hint of a small infection so the medical team was very worried. When I got home, I took it super easy on the food mostly to be kind to my small intestine. Within a few weeks the 17 pounds were gone - great, right? Then it happened again!!! This time 5 lb gain overnight! Same swollen tummy and pain but no blockage. That was about 10 days ago. This time I saw what for me was the common denominator.....bread and pasta! I had let myself get too hungry and on one day I had a huge sub and later a big pasta dinner. I think I also neglected the fluids I would normally have. Presto - massive bowel upset and calorie overload. This time I didn't give up and accept the weight gain; I have gone back to soups and yogurt etc. and have few carbs. After about 5 days the extra weight is gone and so is the soreness and most of the swelling.
So - that's just my experience. I have no idea what to expect post-reversal but I'll let you know what happens. I'm at a good weight now and I will work hard to keep it + lose a little bit more.
take care all,
ps - I'm 46
June 09 - hysterectomy due to pre-C cells on Cvx. Complications during surgery due to adhesions....resulted in nicked bowel
July 09 - massive infection due to nick. Hospitalized 3 weeks, all antibiotics and drains failed. Temp Ileostomy placed as last resort.
Jan 4/10 - bowel resection to remove damaged section
Feb /10 - flexible sigmoidoscopy confirmed resection healed perfectly
Feb 5/10 - first follow up to screen for evil pre-C cells, results in 4 weeks
Mar 1/10 - scheduled ileostomy reversal !!! Yahoo :)
June/09 - present...forever grateful for this forum and all members !!