Questions about small intestine adhesions

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Brenda_M
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/24/2010 11:59 PM (GMT -7)   
My hubsband had surgery 3 days ago and they found ALOT of adhesions on his small instestine.  He has a colostomy bag fitted and they because there were so many adhesions they did not even cut the obstruction in the rectum. 
 
My question is how have you coped with adhesions - i know they can possibly come back - but not sure how long that will happen?
 
He had colon cancer but cancer is clear.
 
Big worry is dealing with adhesions?  how has your experience been?
 
Doctors say there is not much more they can do about it?

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/25/2010 4:49 AM (GMT -7)   
Everyone one is different and some have more problems with them than others...if they are removed, they just come back and I have heard of people having problems within days of surgery to remove them.

I have them, but do not have issues with them (knock on wood) on a daily basis...but when I have surgery it takes longer than normal because of them.

Glad to hear he is clear of cancer and welcome to the forum!

Brenda_M
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/25/2010 7:13 AM (GMT -7)   
Thanks Ohio - I am sure I will be spending more time here in future.

I really hope that we are lucky with the adhesions.

Where are your adhesions? Oh man, I am also hoping they don't give
any more problems.

Do you know of other recommended sites I can read up on?

Thanks very much!

sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 1/25/2010 7:12 PM (GMT -7)   
Ohio is right about adhesions being unpredictable and different for everyone. I have had adhesions come back fairly quickly after some surgeries but then had years after a surgery without them bothering me. There is a mesh substance that the surgeons can put on organs, etc to help prevent adhesions, I am not sure what it is called...but they use that on me evertime I need surgery. I hope the cancer stays away and your husband is back to himself soon.
Crohn's Disease since 1991, 2 rounds of ng tube feeding, Ileostomy since 1993, Proctectomy in 1997, several resectionings & stoma revisions, many blockages and a few abscesses and surgery to remove them. Medications used at one point...prednisone, 6MP, Flagyl, Asacol, Pentasa, Imuran, Cipro, Rowasa, Cortifoam, Methotrexate


Happiness is a journey not a destination - Souza


Stacey4127
New Member


Date Joined Nov 2009
Total Posts : 16
   Posted 1/25/2010 8:47 PM (GMT -7)   
Hi Brenda

Adhesion Related Disorder is a terrible disease that many people have to deal with and unfortunately few doctors understand. I have dealt with this disease most of my life. Surgery after surgery only to have them come right back. Fortunately not long ago I found a surgeon who specializes in ARD and he performed surgery on me and rid me of my adhesion problems. He used special adhesion barriers during surgery and special surgical tecniques in order to keep adhesions from forming after surgery. I have not had pain from adhesion in over 4 years and that is a record for me. Unfortunately, I have had other medical problems which I have had to have taken care of, such as colonic inertia, which was a result of all the many surgeries I had previously had, but the adhesions were taken care of. There is hope out there for Adhesion sufferers. God bless you and your husband.

Stacey
1994 - exploratory laparoscopy
1998 - emergency laparotomy ovarian cyst
1999 - emergency laparotomy removal of left ovary and endometriosis
2000 - total hysterectomy - laparotomy
2001 - laparotomy removal of mass which was adhesions
2001 - laparotomy due to complications of previous surgery
2003 - laparoscopy removal of adhesions
2006 - laparoscopy removal of adhesions
2009 - 12/17/09  laparospic subtotal colectomy with anastamosis and removal of adhesions
2009 - 12/26/09 - open laparotomy due to leak from subtotal colectomy - ileostomy placed
2009 - 3/2009 [ REVERSAL SCHEDULED]


Brenda_M
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/26/2010 1:07 AM (GMT -7)   
Thanks for your advice - it is a relief to know there is hope.

He is day 5 after his op and very still sleeping all the time -
which is very good for healing. Should he still be tired after
day 5 - I think He must take all the time he needs - it's just
difficult seeing him like this.

I am still feeling so nervous as I don't know how this ends.

Kstewy
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/27/2010 9:08 AM (GMT -7)   
Hi Brenda,
So sorry your husband deals with painful adhesions after overcoming cancer. When the doctors' say there is not much they can do about it, please research their claim. My daughter suffered incredible pain for 14 long years due to adhesions. Surgeries in the US failed. I then found a doctor in Germany who has a high success rate beating the odds against this illness. My daughter and I went to Germany in 2003 and she had surgery once again. This trip was a godsend! We came home with her free of pain, able to eat without doubling over in pain and finally able to walk uprightly. She has since married and has given birth to two children! Given her prior condition, it is a miracle story.
I've written my daughter's story, though it appears I cannot share the information with you on this board or it may be considered advertising.

And, I am not here to advertise, but rather to inform you that just because certain doctors claim there is nothing more that can be done does not mean that there isn't hope elsewhere. I wish you the very best in your quest to help your loved one!

Brenda_M
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/27/2010 12:13 PM (GMT -7)   
Thanks Kstewy - its good to know help is out there.

Day 6 and all He does is sleep and rest and sleep.

These have been the longest 6 days of my life.
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