How does it feel to have yourrectum removed?

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lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 1/27/2010 2:28 PM (GMT -7)   
I have been reading alot about Brooke ileostomies, K-pouch, and BCIR.  I have my colon removed, but still have my rectum.  For each of these surgeries they remove the rectum.  Can anybody tell me how this feels or how bad it is and if it takes a long time to heal?
 
butterfly

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/27/2010 4:08 PM (GMT -7)   
It feels weird, lol. It hurts for a while, but its not awful. Mainly it itches, eek the itching!
After a few weeks it only hurts when you go over bumps in the car, lol. And then a little while after that it doesnt hurt at all.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/27/2010 4:15 PM (GMT -7)   
Everyone is different, but for me, it wasn't as big of a deal as I thought it was going to be. I had Crohn's in the rectum and was in constant pain before I had it removed. Once it was gone, there was such a relief from that chronic pain that I didn't miss it for one second. Still don't miss it.

My surgeon left the wound open to heal from the inside out, so I packed it with saline-filled gauze twice a day to keep it from getting infected. It took about 6 months before it completely closed up, but I got into a routine of packing it before work and then again before going to bed. It took all of two minutes, which was no big deal.

If there was any pain in the beginning, the pain pills took care of it. I had my colon removed at the same time, so the abdominal incision was much more painful than the rectum removal. In my opinion, you've already been through the worst of it.

Hope that helps! :-)

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/27/2010 7:29 PM (GMT -7)   
I had zero pain or discomfort from having my rectum removed.  Like Cecilia, it was a relief to have it gone!
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/27/2010 8:59 PM (GMT -7)   
Ditto to flchurchlady and suebear...the rectum area didn't hurt at all (I thought it was going to) but some people do have issues with it. I think staple pain was worse:(

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/28/2010 10:30 PM (GMT -7)   
Like most, I didn't feel it. I was, and am, so enamoured of Oscar that I really didn't pay it much mind. Now though, I still get the occasional "phantom" pain. I had such severe Crohn's in my rectum and area that it was a relief to have it sewn up and done.

-Allie
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/29/2010 12:32 AM (GMT -7)   
Due to uncontrollable bleeding, they weren't able to remove my rectum. 

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 1/30/2010 4:32 PM (GMT -7)   
Am I the only one who thinks it feels like my butt cheeks were taped together?? I wonder if my procedure was a bit different than the norm b/c I had so much skin breakdown at the time of surgery? Oh well...being Crohn's free is worth it.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/30/2010 8:59 PM (GMT -7)   
i think i know what you mean, sometimes it feels  like its stuck together down there or something.  Kind of like a wedgie, even though i know i dont have one!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 1/31/2010 12:38 PM (GMT -7)   
LOL @ Summer & Justjen....it does feel like that sometimes doesn't it???

-Allie
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


joymoy
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 2/1/2010 12:58 AM (GMT -7)   
I don't remember exactly how it felt because I was 3 years old when mine was removed...
But, have you considered a J-pouch? With a J-pouch you only have a temporary ileostomy, and the pouch takes on the job of the rectum. It might not be for everyone, but I've had this set up for years & am so thankful I don't have a permanent ileostomy!

lasbutterfly
Regular Member


Date Joined Nov 2007
Total Posts : 281
   Posted 2/1/2010 4:33 AM (GMT -7)   
Before my first ileostomy surgery, the docs said that I was unable to have j-pouch surgery.
 
butterfly

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 2/1/2010 12:38 PM (GMT -7)   
I still have my rectum but the phanthom pain, feeling like I need to poop all the time, bothers me daily. The docs all say it is normal but it seems like it is taking forever for it to go away. Seven months of thinking you are going to mess yourself is too long.
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