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not creative
Regular Member

Date Joined Mar 2007
Total Posts : 470
   Posted 1/28/2010 1:14 AM (GMT -6)   
Well, I went to the surgeon for a consult today hoping they would tell me they will do surgery to help me out and they will! I'm going to have a total proctectomy with end colostomy. Since my Crohn's is only in my rectum, she said that the best thing would be to get rid of my rectum and give me a colostomy. I think this sounds wonderful and I'm so excited to spend even 5 minutes without the constant BS that it this DD, let alone longer!

Now, healingwell is a fabulous resource for this sort of thing but I was wondering if anyone out there knew of any other resources that have a lot of good info that I can look at until my op? I am really looking for some sort of colostomy resources since I have been able to find a lot on ileostomy, but not really colostomy.

Has anyone had this done?? Advice? Your story?
Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Three abscesses that are now fistulas, with three setons!
On: 6MP, Zoloft, Cimzia (working so well, I'm on Miralax too!), folic acid, b12
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/28/2010 8:06 AM (GMT -6)   
You could try www.UOAA.org (United Ostomy Association of America) they have many links to all sorts of information.

There are also a few members here who have/had Colostomies for their Crohn's dx...I'm sure they'll chime in, too!

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 1/28/2010 8:08 AM (GMT -6)   
Have a look at www.healingwell.com/pages/Ostomies/ for a list of some of the resources for ostomies that Healingwell recommends.
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums


I'm not a complete idiot - some parts of me are missing!

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