Soo an update, had the surgery on Monday. Still in hospital. A lot of the nurses have given varying average times in hospital of a couple of weeks to 2 months. My Surgeon has told me as far as he is concerned I can leave today, providing I am comfortable with leaving and that my Stoma Therapy Nurse thinks ill be fine too. My STN and I have decided that I'll leave on Monday arvo or Tuesday morning.
I had my first shower on Wednesday, and got out of bed for the first time on Tuesday. Oxygen nose thingy is now permanently off me as of Wed arvo, that horrible catheter was taken out early Thursday morning. My drip and painkillers (via cannula) were taken out Thursday arvo and I am now on oral medication (if needed). Had a liquid diet first few days, slowly progressed to normal food now (I had steak for lunch :p ).
So from my understanding I've recovered fairly quickly. Tues & Wed was really weird for me as I didn't have to get up to go to the bathroom at all (bag was emptied from the bed on those days). It's was a rather nice feeling...
Still need to go to the bathroom properly (as I have a rectum), but that's been once a day, once every two days or sometimes three times a day. I guess it really varies and will also calm down over time.
I'm emptying the bag by myself ok, changed it myself for the first time today (while my STN was present/helping). Although, I'm not quite looking forward to going home....
Getting out of bed is kinda hard (I use the bed remote control to adjust the head to a sitting position, lower the bed, then shuffle over to the edge, put my feet on the ground and stand... all while trying not to use my stomach muscles), walking is annoying (I'm usually a very fast walker, my friends often have to run to keep up, but now I'm really slow, I'm hunched over so as to not stretch my stomach and it takes a bit of effort to do it).
I'll have help when I'm at home, but I don't know how I'm guna get in and out of a normal bed without seriously hurting myself :s (Need to steal a hospital bed, anyone got a ute? :p ). How long does it take until you can change positions (from laying to standing) normally?
The surgery was done via key hole, I have three small cuts (not including the stoma) where they entered; one of which is on my belly button. I'm keen to take the tape off them to clean the blood off and see what my belly button looks like now).
My stomach feels like it's got a kind of heavy weight attached to it, it's kinda weird and hopefully its to do with the surgery and not the stoma??? (My bag is basically empty and I still have that feeling). Do you's ever forget its there?
My stoma is also quite noisy! Not all the time, but it'll often make spurting noises and stuff. I'm hoping that calms down over time too...
How long does it usually take for food to go through into your bag once you have swallowed it? I asked a nurse today and she said depends on what I ate, so like mashed potato or pasta or something may take a lot longer compared to liquid things like yoghurt....
I mainly asked her as I ate mashed potato, steak, a sandwich, crackers & cheese around 12:30 today for lunch and nothing much has came through (my stomach is pretty noisy though, so maybe it's still digesting it) and it's been 4 hours.
Oh and yer, We put Jam on toast and Jelly (the solid looking thing that wobbles) is a desert...
Male, 22, diagnosed with Crohn's at 13.
, Humira injections.
On and off Prednisone for years.
I pop Loperamide (aka Gastro-Stop) like candy!
one, two, three, four colonoscopies.
Getting a (permanent) bag in February!
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