Ideas for Ileostomy..J-Pouch..Healing Process..

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christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 1/28/2010 8:03 PM (GMT -7)   
Well, after an awful 4 years with UC, about 2 weeks ago my husband underwent the ileoanal anastomosis surgery (ileostomy with a j-pouch)... and everything went as expected, and I believe he's adjusting fairly well. He's lost about 30 lbs, but we've been reassured he'll gain it all back. Now that he's in recovery with his ileostomy...while the j-pouch heals itself...he's having difficulty sleeping at night. I wasn't sure if this was common, but it seems as though he can only sleep on his back, as he says it hurts to lay on his side. I was wondering if anyone had any suggestions who has had this done? I don't feel like he's healing very well because he's not sleeping at night as he's so uncomfortable sleeping on his back.
    We've adjusted our families eating habits and we don't eat after 6:00 pm as it causes his bowels and that little stoma to be too active and he wakes up often having to empty his bag at night time. It's taking a lot of getting use to, but I was wondering if anyone could offer some additional support or advice.  I am very proud of him, but I just want to help him somehow as I know this is such an adjustment. Normally you only have to have the ileostomy for 2-3 months, but after a little mishap (sneezing) the doc said it might take 6 months for him to heal properly! No worries though, we are keeping our heads up, and praying the Lord helps us get through this. However, any additional ideas or comments are welcome! I have already ordered him a 'stealth' belt to help with support of the bag..ect...but any ideas with the sleeping thing would be greatly appreciated! Thank you all!!! He currently hasn't been taking anything, but I did call the doc today to see if he could get something to help him sleep at night. Also, someone mentioned a fiber supplement or immodium...does he need to be taking something like this even with a bag? Not sure, as our surgeon hasn't mentioned anything about it...Thank you all again!
 
Love in Christ,
Alainasmilewinkgrin

Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
 
 
 
Current Meds:
Levothyroxine (.88 mg)
Sulfasalizine
Prednisone..when all else fails!! :)
 
 
 
 


Stacey4127
New Member


Date Joined Nov 2009
Total Posts : 16
   Posted 1/28/2010 8:37 PM (GMT -7)   

Hi Alaina

I just had surgery and was given an ileostomy as well.  I am supposed to have it reversed in March.  I found it hard to sleep when I got home too and still do at times.  I also lost a great deal of weight, about 25 pounds.   It is a very big adjustment.  I have to lay flat on my back when I am used to lying on my side.  I have found that sleeping on two or three pillows and making sure my head is propped up and also sleeping with a couple of pillows under my  knees have helped me to be more comfortable.  I still have to get up in the night and empty my bag, I do it out of habit even if it isn't full, as I am so aware of it.  It is just going to take a good bit of time.  It has been about three weeks for me now and I am still adjusting, I still find it very annoying and sometimes unbearable.   I would definitely call his doc and ask for something to help him sleep because sleep is a major important part of the healing process and he needs as much sleep as possible over the next several weeks.  I wish you and your husband the best of luck, God bless you both.

 

Stacey


1994 - exploratory laparoscopy
1998 - emergency laparotomy ovarian cyst
1999 - emergency laparotomy removal of left ovary and endometriosis
2000 - total hysterectomy - laparotomy
2001 - laparotomy removal of mass which was adhesions
2001 - laparotomy due to complications of previous surgery
2003 - laparoscopy removal of adhesions
2006 - laparoscopy removal of adhesions
2009 - 12/17/09  laparospic subtotal colectomy with anastamosis and removal of adhesions
2009 - 12/26/09 - open laparotomy due to leak from subtotal colectomy - ileostomy placed
2009 - 3/2009 [ REVERSAL SCHEDULED]


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 1/28/2010 8:53 PM (GMT -7)   
Hi Alaina!  First of all, welcome to Healing Well!  Sounds like your husband on the road to good health!!  I had my jpouch created in October and am awaiting my reversal this upcoming Tuesday!  I remember having a difficult time sleeping at night (in general) but that is because I was in lots of pain and took pain meds ATC which made me sleepy throughout the day.  Once I was able to taper off of the pain medicine, I noticed that I wasn't sleeping much at night either.  My doctor prescribed Ambien (sleep aid) which helped me get a solid 4-5 hours of rest.  I would also empty my bag/pouch 1-2x at night.  I do recall sleeping on my back initially but now I only sleep on my sides with no difficulty.  I think your husband would benefit from a sleep aid initially at least for the first month or so.  I then took myself off of it because I did not want to rely on it solely or sleep.  Good luck to you guys!
 
Darlene
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 1/28/2010 9:34 PM (GMT -7)   
Thank you both, and God Bless you both! So good to know others go through this as well! I will relay the messages, hopefully he'll feel better knowing he's not alone! ;) The doc did give him some vicodin today to help take the edge off at night time, so I'm praying it will help some!


Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
 
 
 
Current Meds:
Levothyroxine (.88 mg)
Sulfasalizine
Prednisone..when all else fails!! :)
 
 
 
 

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