Who has the best Equipment?

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fish1
Regular Member


Date Joined Jan 2010
Total Posts : 106
   Posted 2/4/2010 2:25 PM (GMT -7)   
I am looking down the barrel of illistomy surgery within the next few weeks. I have had colon cancer and most of my colon removed in 2005. Colitis is now tearing up whats left and I am tired of this mess! I see my doc tommorrow for options.
 I had a temporary illistomy (6 months ) while was healing from the first surgery and used Convatec products. I am just curouis what supplies and supplier you use and why?
Is cost a major consideration? or quality and ease of use more important?
 
Predisone 30 mg
Canasa 1000mg
Vicodin


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/4/2010 7:40 PM (GMT -7)   
it really depends on the person. My insurance pays for it, so i dont look at the cost. But i use edgepark, i do have to use who they say is ok to use. I use hollister newimage. thats what the ET recommened and it works so i stay with it, why try something else if what im wearing works?
i like the two piece because i didnt want a one piece that i would have to change the whole thing if the bag had a problem. The ones theysent me home with from the hospital had a clip and i didnt like that at all! so this is the lock and roll.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/4/2010 9:16 PM (GMT -7)   
i alternate. hollister new image two piece and convatec 2 piece.
I like to keep my options open. :P JK. my skin gets sensitive to one and so I'll switch.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 2/4/2010 11:30 PM (GMT -7)   
It's really a personal choice, IMHO. I've tried them all, but, I've been using Convatec 2 piece for over 20 years!! As I said, It's really a personal choice.

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 2/5/2010 1:59 AM (GMT -7)   
"I am just curouis what supplies and supplier you use and why?
Is cost a major consideration? or quality and ease of use more important?"
 
None of the above - at least not as the major consideration.  What matters most is that the product you use suits your skin type and doesn't cause allergies, skin problems, leaks, etc.  Since everyone is different, no one can actually recommend a 'best' product because what is best for them might not be best for you.  You really need to experiment by getting samples from all the manufacturers and trying them out.
 
Good luck.

Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 2/5/2010 8:23 PM (GMT -7)   
I use the Convatec two piece moldable with an eakin seal and stomahesive. I have tried Hollister but everytime I try it I leak quick sooo I'm gonna quit screwing around with it. Yesterday "Privey" and I had a bad day with 2 leaks which hasn't happened in a long time. She was gassy and talked and spit and spattered all day. I ended up catching a leak before it got too bad around 2 ish and I used the Hollister paste that I had purchased off of ebay to try. By 7 pm "Privey" was leaking again and I changed her again, I cal the wafer her undies and the pouch her new dress and she made a mess of both yesterday. Needless to say I went back convatec again @ 7 and we are still holding but she is really noisey and acting a fool today too...

I used to weigh a bunch and I mean a bunch I was a very very big girl. I have now lost down to about 110 lbs and I have a bunch of redundant skin and I mean a bunch and I believe that is why I need the eakin seal and the paste

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/8/2010 3:11 PM (GMT -7)   
I agree it is definitely a personal choice and unique per individual.  I did call and ask for samples from every company and I loved the Convtec two-piece for awhile.  However, as time went on I learned that for me and my lifestyle the Hollister 88300 (1-piece) is perfect when paired with the Coloplast Eakin Seal...oh and not to forget the ever so wonderful Hollister M9 odor eliminating drops!
 
Good Luck to you!
 
smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


elizedge
New Member


Date Joined Feb 2010
Total Posts : 18
   Posted 2/20/2010 3:22 PM (GMT -7)   
new ostomate here, diagnosed with sigmoid volvulus in ER, had almost 4 extra feet of colon, looped and twisted, emergency surgery with colostomy 2/6, will have reversal in June, I have tried all the samples they gave me and ordered my hands down fav. coloplast sensura click. Large opening, really secure rubbery end with plenty of velcro and well sealing and fitting wafer. Things may change over time, but I am pleased as punch with this one.
Blessings all, so glad you are here!
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