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Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 2/5/2010 9:36 AM (GMT -7)   
so i did it and was happy to do it but suffering the aftermath right now.  i had my reversal on monday and have been dealing with this G.. awful gas  pain since.  i started passing my bowels day 2 and by day 3 i had gone 10 times that day.  i walk the halls but still have this excrutiating pain that they call gas.  no meds can make it go away.  walking is the only way.  i walk when i can but the pain is so intense that it hurts to walk.  can barely eat anything.  liquids/solids make me nausesous and bring the gas pain on.  any suggestions?  so far i'm not happy with the outcome but it's only day4, i know.  was just hoping to feel better already/
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/5/2010 12:33 PM (GMT -7)   
i'm sorry you're having so much pain :( but i'm glad it's going ok. i'm sorry your gas pain is so bad. that stinks. (literally?)

so this was the j-pouch connection? are you able to pass the gas without accidents yet? does that happen later? (i'm worried that if i ever have the j pouch surgeries, the gas will cause me as many probs as the u/c did.)

i know you were excited to finally get things done and over with. so hang in there!
keep us posted.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 2/6/2010 6:09 PM (GMT -7)   
hi chassity. thanks for the response. i came home last night after being in the hospital for 5 days. so far, my incisional pain is not nearly as painful as the first surgery where my doctor had created the temporary ileostomy and created the j pouch. it's all the other pains i guess. my doc did my surgery in two parts. step 1 was the j pouch connection and temp ileostomy and all he did this time was reverse the ileostomy. it still hurts but i went 9 1/2 hours today without any pain medication. i had to watch the clock after my first surgery and was in tears before my next dose was due. this time the pains are due to having too much gas inside. i need to pass it in order to feel better. some ppl say the gas is worse than the actual surgery and i think i would agree. i have been going to the bathroom lots and lots. probably a good 15 times a day. it's pretty much all liquid tho cuz i'm too nauseous to eat much of anything solid. this is part of my problem. i need to start eating!!! food doesn't sound or taste good and i normally love food :( i haven't had any accidents but just had surgery on the 1st so only time will tell. at night, i had a little leak on my pantiliner but i think that is to be expected.

so am i happy with my decision? ultimately i will be but this is a very tough time for me. i think i was at my lowest low ever in my whole life this week. you're right, i was so excited to get this done so now i just need to get through this recovery process again. take care. let me know if i can answer any other questions for you.
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009. Reversal February 1, 2010


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/6/2010 7:11 PM (GMT -7)   
Hey Nutz!  I'm happy your surgery went well, and it is behind you.  Now you just have to be patient and listen to your body.  When I first came home from hosp I ate only bland foods to give my body a chance to get "in the swing of things"...For example I would eat strained porridge, yogurt, puddings, pasta...mashed potatoes, etc...just very bland food.  Things straightened themselves out after awhile.  I too had terrible gas pains.  They suggested to me to drink hot things like tea, and use a heating pad...(not right on the incision of course)..this helped alot.  PLUS I walked walked and walked again.  Once you start passing the gas you'll feel SO much better. ..the walking will help with this...  Also I found that my pain meds were constipating me and ultimately causing more gas....I don't know if the same could be true for you or not.  I was on percocet..... Good luck!!! .....Cheryl
 
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 Ileostomy Reversal March 9/09


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 2/6/2010 8:35 PM (GMT -7)   
Darlene,
sounds like your surgery went well. and yes, now only needed time and patience. the bms will slow down and it'll get better for you. best wishes dear! keep us posted.

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis


Liveandlearn
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 2/7/2010 6:06 AM (GMT -7)   
Thanks for posting on this ladies!! This advice and your experience will be helpful for sure when I get my reversal in a few weeks. So far I've learned that it will actually help to introduce foods steadily but gradually as opposed to sticking to liquids post reversal. That makes sense; I'm just not looking forward to yet more pain..and gas. Hydration has got to be something to watch too!
Connie
June 09  - hysterectomy due to pre-C cells on Cvx.  Complications during surgery due to adhesions....resulted in nicked bowel
July 09 - massive infection due to nick. Hospitalized 3 weeks, all antibiotics and drains failed.  Temp Ileostomy placed as last resort.
Jan 4/10 - bowel resection to remove damaged section
Feb /10 - flexible sigmoidoscopy confirmed resection healed perfectly
Feb 5/10 - first follow up to screen for evil pre-C cells, results in 4 weeks
Mar 1/10 - scheduled ileostomy reversal !!!  Yahoo :)
 
June/09 - present...forever grateful for this forum and all members !!
 


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 2/8/2010 10:47 AM (GMT -7)   
Thanks for all the replies. Today I am 1 week post op and I am starting to feel a little better. I am not taking much pain medicine. My appetite is getting a little better but I am still sticking to the bland foods. I still go to the bathroom a whole lot and can't wait for that to normalize somewhat. I will keep you all updated.
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009. Reversal February 1, 2010


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 2/8/2010 11:44 AM (GMT -7)   
I am so glad that things are starting to get a little better. Just remember that you are still only one week post surgery. It can only be up from here on yeah

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5695
   Posted 2/8/2010 12:44 PM (GMT -7)   
It will get a lot better but it will take a lot of time too! The gas pains and pressure in the pouch can be very uncomfortable. Your frequency will also lower when you start eating more. It seems counter intuitive but not eating makes things worse. Keep walking!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Liveandlearn
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 2/8/2010 1:14 PM (GMT -7)   
Hi,
a question to the veteran members who have been through this: how long did it take post op before you could get back to work or even just leave the house for a while without worrying about finding a bathroom on short notice? Was the recovery as much about regaining energy as the previous surgeries or was it mostly about the bowel control?

Best wishes Darlene for a speedy recovery!
Connie
June 09  - hysterectomy due to pre-C cells on Cvx.  Complications during surgery due to adhesions....resulted in nicked bowel
July 09 - massive infection due to nick. Hospitalized 3 weeks, all antibiotics and drains failed.  Temp Ileostomy placed as last resort.
Jan 4/10 - bowel resection to remove damaged section
Feb /10 - flexible sigmoidoscopy confirmed resection healed perfectly
Feb 5/10 - first follow up to screen for evil pre-C cells, results in 4 weeks
Mar 1/10 - scheduled ileostomy reversal !!!  Yahoo :)
 
June/09 - present...forever grateful for this forum and all members !!
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5695
   Posted 2/8/2010 1:54 PM (GMT -7)   
I had a 2 step procedure and went back to work 3 weeks after each of the surgeries. I left the house immediately upon coming home from surgery to grocery shop, do my daily walks (assigned exercise by surgeon), and go out to restaurants. Recovery was about all, regaining energy, lowering frequency, putting up with gas pressure, etc.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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