Hey everyone, im new to this, but i really need to get some sound advice and talk to some people with ostomies. As i learnt in hospital - it seems the majority of the ostomy folk have them as a result of chrohn's, wereas i have one as a result of a schemia (not sure the proper name for it as i've only heard the doc talk to me about it).
I had surgery at the end of september and spent about 2 months there (NASTY) - I dont know exactly how much of my small intestine im working with atm, but what i do know is that my output has been REALLY high ever since i got out of hospital. In hospital i was putting out about 5-6 litres a day, but now i guess i measure it in empties, which id say is a minimum of 8 times a day.
However, recently it has been much worse and i seem to be emptying every half an hour (every ten minutes when i eat). Consequently i have to eat and drink all day long just to stay hydrated and stuff, but obviously that just sends me off again. I had managed to start exercising (had to start from scratch like, which is LOL worthy), but that has gone completely out the window now as just the trip to the bathroom every half an hour completely knackers me out. I take loperamide all day long, codeine and omeprazole a once a day, and i have tried to follow allllll the foods and stuff that the dietician suggested, but nothing seems to really make a difference at the moment. Usually i can manage but im really struggling with the ridiculous output i have at the moment.
Any advice would be greatly, GREATTTLY appreciated! As would the chance to talk to somebody going through something similar to me and ask a few more questions. I have had a really bad time, the worst time of my life with this, and i feel i've lost a lot more than just some bowel and a bit of dignity. I understand with chrones the surgery usually seen as relief, but i dont believe that, i cant see how this could ever been seen that way.