Finally getting a total coloectomy

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Date Joined May 2009
Total Posts : 833
   Posted 2/15/2010 6:40 PM (GMT -6)   
Hello everyone,  Well this Friday the19th I will get my surgery.  He said he has to take the whole colon and will try to hook me up to my rectum.  He said if the connection leakes when he tries then he will give me a temp ileostomy.....He says this is a big surgery and it takes 2 in the hospital for at least 7 days...3 months of recovery...
I am so excited and scared well anxious at the same time.......  So does anyone know??  Even with the pain meds in the hospital are you still in agony with this surgery??  Kind of unshure of what to expect...  Input please...leslie
Leslie King

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Date Joined Feb 2006
Total Posts : 5698
   Posted 2/15/2010 7:33 PM (GMT -6)   

Pain is managed in the hospital.  24 hours after surgery be sure to get up and start walking and walk a lot during your stay. It will help with your recovery.



dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Feb 2005
Total Posts : 421
   Posted 2/15/2010 7:36 PM (GMT -6)   
You are doing the best thing ever!! As Sue said, get up and walking as soon as you can, it really helps!! The pain is not that bad, promise!

RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 2/15/2010 7:54 PM (GMT -6)   
pain isnt that bad, the drugs are good! morphine will be your friend, lol.
But take some gas-x with you! the gas is worse than anything.
it will take a while to get back to feeling 100% but its worth it to be healthy!
good luck!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

Regular Member

Date Joined Aug 2008
Total Posts : 470
   Posted 2/15/2010 8:42 PM (GMT -6)   


So glad to hear you are finally getting the surgery! We chatted a long while back when you were visiting with your family I think, it may have been over the summer.  I had told you about the sitz marker test.  If you've ever had any abdominal surgeries then this isn't a bad surgery at all.  Do you know if you'll be getting an epidural following the surgery for pain control? This is VERY helpful, the only downfall is that you have to have a catheter for the whole time you have it in, but it's well worth it!!!!!  Like Sue said, walk and walk and walk some more, that will help you the most!  Is your surgery open or laparoscopy?  Mine was open and I was only in for 5 days so there's hope that you won't have to stay in for 7.

I wish you the very best!  My life has never been better and I hope you have just as good of an outcome!  Take an ipod with you if you have one, it helps drown out the hospital sounds:)

Prayers are with you,


spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile/many kidney surgeries 5/09 through next summer
There's AWAYS HOPE, there's a doctor out there that WILL help you and things WILL get better :):):):):)

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 2/15/2010 10:40 PM (GMT -6)   
best of luck to you Leslie! as for the pain, i hate pain and can't stand the slightest pain, but after about 4 weeks i was totally pain free. today i'm exactly 6 mons post op and havn't experienced any pain since.


06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 2/18/2010 7:40 AM (GMT -6)   
You will be fine :-) As the others have said the best thing is lots of walking, I was able to get up the next morning and take a shower and my surgery went for 6 hours. Doc was surprised at how little I used the morphine. All up I spent a month in hospital I was in a couple of weeks prior to surgery then 2 weeks after surgery as I developed an abdominal infection and had to go back in for surgery but I still finally felt better. The pain I had was just post op not disease pain, it is a good feeling. Good luck and keep us posted. You are in good hands :-)

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 2/19/2010 7:07 PM (GMT -6)   
Hey Leslie - just in case you brought a laptop to the hospital, just want you to know I'm thinking of you and wishing you well.

You'll be glad you had this surgery.

I echo the advice here about walking. As soon as the nurses say it's time to get moving, even just sitting upright in a chair and not the hospital bed gets you on the road to healing much faster. Then when it is time to take a few steps, even just a few rooms down the hall and back to your room is beneficial. It won't seem like it but it is! The hourly breathing exercises help too (these keep you from spiking a fever and keep your lungs clear).
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening

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