having a hard time

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Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 2/16/2010 2:07 AM (GMT -6)   
Hey Everyone. My son Dillon had his colon out in September and was given an end ileostomy while we waited for him to get his health back. He did so well! Five weeks ago he had his J pouch built and was given a loop ileostomy while the J pouch healed. He has had such a hard time time from then on. He recovered well enough from the surgery itself but the day after we got home he obstructed and was in the hospital for five days. We were home a couple of weeks and he obstructed again. We are still in the hospital. This is day 8. Both times the obstruction has been just behind the stoma. We are told that this problem should go away after he has his ileostomy site closed in the next operation. He has had a pouchagram done and the J pouch has healed great so it is ready to go. The surgeon is just waiting to get the inflammation down in the bowel before she will operate. This could be a couple of weeks away.

Just wondering if any of you went through this. He is getting so down and has lost so much weight. This is a very difficult time.

Cathy cry

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 2/16/2010 6:35 PM (GMT -6)   
I am sorry I don't have any insight since I have a permanent ileo...but I was wondering why he has inflammation in the bowel? Is it from the obstructions or something else?

I hope he can get his take down surgery sooner...sending (((HUGS)))

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 2/16/2010 10:07 PM (GMT -6)   
The inflammation is due to the surgery he had to build his J pouch and from his obstruction. It is more the inflammation due to the surgery that is the concern since the whole intestine would be inflammed. It takes a minimum of 6 weeks for this inflammation to go away.

Thanks for the hugs!

Regular Member

Date Joined May 2008
Total Posts : 166
   Posted 2/17/2010 11:39 AM (GMT -6)   

Hi Colliecat,

I am so sorry to hear about this - he is so young what a shame and for you to have to worry - you are going to need a good vacation after this!

I have no answers I am afraid - however I gather that loop ileostomies are much worse (this is what I have, but have never had an end one). 

Just wanted to send you my support - you have been so helpful to me in the past.

Best wishes and hugs,


Diag proctitis 97 - major flare and extension to left sided colitis Aug 2006 - present.

I have bled every day since Aug 2006 (I quit smoking in June 2006).

Imuran (Azathioprine) game me liver damage. LDN no luck.  Asacol and mesalazine enemas - seemed to make worse. Lots of Prednisone :(  No luck on drugs!

JPouch, total colectomy and ileostomy (part 1) completed Jan 2010 :)

UC no more!!!

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 2/17/2010 1:44 PM (GMT -6)   
Hope he feels better soon. Would lots of smoothy help the weight lose? Yum, wish that were my problem instead of other way around.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

Veteran Member

Date Joined May 2009
Total Posts : 833
   Posted 2/17/2010 4:59 PM (GMT -6)   
     I am so sorry that Dillon is having such a hard time and my heart goes out to you.  I just hope that I dont end up with a bag or a pouch on Friday, some seem to have problems...  I have my surgery on friday for a total coeloctomy.....I just hope I have smooth sailing.   I hope that the doc's will help Dillon get back to health, I will be praying for him...Leslie
Leslie King

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