Stressed out about the total coeloctomy

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Date Joined May 2009
Total Posts : 833
   Posted 2/17/2010 5:04 PM (GMT -6)   
Hello everyone.....some one said that they make a huge incision to do this surgery, does anyone know where they cut?  Across or up and down,???  I am freaking out because I really dont know what to expect, I wish I could find something on the internet that would show me exactly how they operate on you, and does anyone know a web-site I can go to to watch a video???    Any and all input is glady accepted....Leslieconfused
Leslie King

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Date Joined Feb 2006
Total Posts : 5698
   Posted 2/17/2010 5:37 PM (GMT -6)   

Your body's physiology and your surgeon's training will dictate your incision. You can line 10 of us up and we all have different scars. Your surgeon might be able to give you an approximate idea of where he will cut but until he gets in there your incision might be longer then estimated.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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Date Joined Jan 2006
Total Posts : 768
   Posted 2/18/2010 3:31 AM (GMT -6)   
I did see a whole movie of the operation somewhere on the internet but have no idea where it was. My incision is from belly-button to pubic bone. Healed pretty straight and thin which is nice for eye value. I don't wear stomach showing wear so it doesn't really matter even though I have a nice six-pack for a little old lady!!
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 2/18/2010 6:17 AM (GMT -6)   
If you're not having it done laproscopically, the incision will most likely be vertical from pubic bone to the belly button area.

When it comes to vanity, my scar healed so that I'm able to wear a bathing suit that's a bikini top with a skirt that shows my stomach, and it doesn't show.

When it comes to pain, they'll give you excellent pain meds by IV in the hospital to keep you comfortable. When you get home, you'll be able to take pain pills until the pain goes away.

I think watching a video of what they're going to do would make my anxiety worse... shocked

When is your surgery? If your anxiety is really bad, you could always ask your surgeon for some Xanax to help keep you calm until surgery.

It's going to be okay, I promise!

(((BIG HUG)))
:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 2/18/2010 7:02 AM (GMT -6)   
Ditto to what has been said...we are all different, but the 'gold standard' (for an open surgery) is a midline incision like Cecilia mentioned. It is usually closed with staples that are removed anywhere from 1 - 3 weeks post op.

I really wouldn't suggest watching a video of the surgery while your anxiety is so really isn't necessary for having the surgery. If you want specific questions of how YOUR surgeon does things, give their office a call! I bet the doc's assistant will be able to answer most of your questions:) Just have them down on paper so you don't forget any!!

Hang in there, you'll do just fine!!

Veteran Member

Date Joined May 2009
Total Posts : 833
   Posted 2/18/2010 1:04 PM (GMT -6)   
Thank you Cellia, and OHIO76, Just talked to the nurse at the doc's and she explained everything. I was really amazed when he says it takes 2 surgeon's to operate...but I am calmer today. My daughter took me out for dinner and some gambeling at the casino last night. So I ate a tiney bit and lost a boat load of money, and had a great nights sleep. So all is well with me in the world today, tomorrow the fun pain begins.... How long did you guys get to have your pain pump while you were in the hospital?
I have had trouble in the past with surgeies that they could not get my pain under control, but that was when I was on heavy pain meds for years then. But now I only take one vicodin a should be better pain management this time and he ususes Fentnal in the pump and not the crappy morphine which never helped me...So thanks again to everyone...Leslie
Leslie King

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