Thanks for the responses HopingForAnEnd, Marsky and tinkerbell2 -
My CI is severe according to the Transit Time Study. I hadn't had a bm in 8 days when the x-ray was taken so all 120 markers were still inside me. In addition the vast majority were still on the right side of my colon. It took 2 Fleet enemas and a hydro-colon session over the next 3 days to get the impacted stool out!
I had an Upper GI with Small Bowel Follow Through that was normal but mentioned delayed transit of barium through the GI tract. Both colonoscopies I had mentioned my colon is tortuous throughout and prone to significant looping. I will be having a Defecography this week to see if there's any problem with my pelvic floor muscles.
I currently take 8 Senokot and 4 colace a day (half in the morning and half at bedtime). about once a week I also need Ducolax or some other stronger laxative which makes be nauseous before it works. In the last week I have had 4 bm's which is pretty good for me.
I have lost 20 lbs. over the last 24 years of having constipation which again began when I started taking medications for chronic pain - fibromyalgia. I now weigh 107 lbs. and am 5'7" (was thin to begin with). For a long time I was managing ok with fiber, magnesium and diet but the last 5 years I have needed stimulants to go. Amitiza, Miralax, Lactulose helped at first but stopped working after 3 or 4 weeks. I've decreased my meds as much as possible. We've tried different meds but that hasn't helped.
The older surgeon that wants to leave 6 - 8 inches of my sigmoid colon said my chances of having a good outcome were good but did mention the possibility that it could stretch out over time and constipation could return. He would then have to go back in and remove the sigmoid and maybe part of the rectum. I sure wouldn't want that to happen!
The younger surgeon wants to take the entire colon said I had a 75% chance of a good outcome. He said an Ileostomy would work for sure but the thought of a stoma and a bag freaks me out a bit. I'm in the pool quite a bit but he said it wouldn't be a problem.
I'm not sure which of the 3 options would be best for me. I'm also not super confident in either surgeon. I asked the older one for phone numbers of a few prior patients that had similar surgeries and he said ok but he hasn't followed through yet. For a second opinion I requested to see the Chief of Colorectal Surgery at UCI but after reviewing my history they didn't allow me to see him. They had me see a 37 year old surgeon that I know nothing about and he wasn't very talkative.
I don't know if we're allowed to ask for referrals on this forum? I live in Southern California.