Feeling Cold All The Time!

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Gilda
Regular Member


Date Joined Apr 2009
Total Posts : 194
   Posted 2/20/2010 10:21 PM (GMT -7)   
Hi Everyone, I haven't been on this site for a couple of weeks because I have been very ill! I am going to try to go back and read all the new posts soon. I really hope to find that many of you have improved and are feeling much better. Lizzie I really want to get updated on you; I just want you to start feeling better!

My question for everyone: I didn't mention this in earlier posts but ever since my sub-total colectomy back in April '09 I often feel really, really cold! I live in San Diego and it can be 78 degrees and I walk around with a long-sleeved shirt and 2 coats! Prior to this surgery I almost always felt very comfortable; my body temperature just seemed to regulate itself. Now for the last 10 months I am often "freezing." It feels like someone filled me up with an icy slush and it is running thru my veins!!! I am not kidding, this is a very weird symptom. I am trying low dose iron (just started) altho the blood tests don't show me to be anemic. The doctors don't know what the problem is! Also, I am still having problems with chronic diarrhea and feeling weak. Any ideas?

Thanks,
Gilda


Edited to add a title heading for you :) ... Shaz

Post Edited By Moderator (Shaz032) : 2/21/2010 6:15:23 AM (GMT-7)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/20/2010 10:56 PM (GMT -7)   
dehydration would be my guess, with the weakness and all.
or maybe your blood pressure is off some.
hope you get it figured out!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/21/2010 3:59 AM (GMT -7)   
I agree with summerstorm...the fact that you have diarrhea would lead me to think dehydration.

I don't know if you can use Imodium? or, Metamucil(they say wafers work best)? Those may help thicken things up enough for you to stay hydrated. If you do/can try those just remember that you probably won't need the full dose listed on the bottle...you'd have to experiment for your body...just increase slowly.

I don't know why you had your sub-total colectomy so be careful with Iron (which I assume is the reason for 'low' dose).

LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 2/21/2010 8:19 AM (GMT -7)   
Gilda,

I think Summer and OHIO had good suggestions for you---I just wanted to also mention that after my colectomy, I was feeling cold (particularly my hands and feet) for months afterward.

I finally (after some blood work) discovered that my iron level (specifically ferritin, which is your stored iron) was very low, and docs said this can cause someone to feel cold. I had to take mega, prescription iron supplements for 4 months before my levels got back to normal range. Apparently it takes a while to build iron stores back up.

Good Luck! I live in Pennsylvania, where winters are quite cold--you must be feeling Really cold to be chilly in San Diego...! :)

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 2/21/2010 8:27 AM (GMT -7)   
Gilda, a side effect of iron is constipation. SO, take it and maybe it will help you with the diarrhea!

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 2/21/2010 8:29 AM (GMT -7)   
I no longer have an ostomy but I experience multiple bm's each day and some days the dumping effect. I feel just wrung out and depleted when I have days like this. I was always a freeze cat before my cancer/colon resection but even more so now.

One thing that does help me is to walk on the treadmill (not on a bad day). When I feel good, just getting my circulation going again helps. Or just floor exercises (Pilates).

But like you I'm often cold year round. In the summer if we dine out in a restaurant and the A/C is cranked low in that facility, I can barely get thru my meal, my teeth are chattering something awful. Even if it's 100+ outside I can't wait to get outside in the sunshine and even sit in a hot car, windows down though. To thaw out.

This is one of the quirks I have now post-surgery. I wear lightweight thermals from November to March, wear cotton sweaters in the summer, often sit outside on the deck just to get warm even on 80 degree days.

Try the physical exercise, I do see an improvement when I'm more active, I am less cold. My colon surgeon said to choose one of the 4 best forms of exercise - walking, jogging/running, bicycling, or swimming laps (the best one he said since it doesn't put stress on joints). I chose brisk, fast walking.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening


coastfishin
Regular Member


Date Joined Jun 2009
Total Posts : 213
   Posted 2/21/2010 1:29 PM (GMT -7)   
Gilda,

I am the same way with being cold ALL the time. I am sitting here now in my house which is about 73 degrees. I am wearing under armour cold gear sweat pants, a t-shirt, and a sweat shirt, and I am freezing. I can't even stand to go outside because the cold just cuts like a knife through me. I am on prescription iron now due to anemia. I figure the anemia has got something to do with it. I go back to the doctor Thursday, I think I will ask him about it. I live in NC which has a moderate climate but I wish I lived in Key West!
Jen

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 2/21/2010 3:54 PM (GMT -7)   
Hey all, if you're trying to find the perfect winter pair of sox, look no further than Smartwool brand. My youngest daughter in college was always complaining about wet sox and cold feet (she goes away to school at a campus that is over 200 years old, cobble stone streets, etc.). Someone told us about Smartwool and they solved her problem. I even tried a few pairs. Trouble is they are pricey but this time of year they are on sale (Bass Pro Shops is one store that carries them).

I also have purchased light weight thermal pants and long sleeved T's from Target. They are just wonderful to wear under a pair of corduroy pants and a sweater in the winter.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/21/2010 6:07 PM (GMT -7)   

I agree with everything everyone has mentioned...I recently had two days of watery output and after a heafty dose of Immodium I started to feel tons better! 

I hope you get to feeling better very soon!

smurf
: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/21/2010 9:27 PM (GMT -7)   
i shoudl have mentioned this, but when you get dehydrated sometimes you cant catch back up on your own, and its good to go to the dr or hospital to get fluids. Esp if you cant slow down your output
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/21/2010 9:28 PM (GMT -7)   
oh and jen what the heck happened to our moderate climate! this is the south for goodness sake!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


coastfishin
Regular Member


Date Joined Jun 2009
Total Posts : 213
   Posted 2/21/2010 11:44 PM (GMT -7)   
I think our moderate climate took a break this winter. It was very nice here in Mocksville, NC today but cold weather is apparently returning this week. Of course when it is in the 60's and 70's everyone else is running around in t-shirts, and I am still in sweatshirts. People think I'm crazy....nope just COLD!
Jen
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