Sore right beside the stoma

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Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 2/25/2010 7:08 PM (GMT -7)   
I have had my ileostomy for just over one year.  To date not too many problems.  I changed everything this morning and there was a sore right next to the stoma.  It is the size of the end of my pinky.  I was wondering what other's expereinces were with this, I am sure it happens, but I am kind of nervous that it wont heal.  Any suggestions.  I checked to see if the flange had leaked and it didnt seem to have...Any ideas would be great.
Thanks
Sue

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/26/2010 6:39 AM (GMT -7)   

I don't know what caused the sore, but I get little redness areas and semi-sores b/c of leakage all the time.  The Eakin Seal I use heals everything up within a few days for me...I'm sure others have products or home remedies that work for them.  I hope your sore gets better though!

smurf
: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 2/26/2010 6:41 PM (GMT -7)   
Thanks Robin - I have been doing alot of running lately, I am trying to do a 1/2 marathon in may, but it hurts to run with this sore. I am going to try a really tight belt and see if that helps.
Sue
UC 2003, Ileostomy 2009

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/26/2010 8:27 PM (GMT -7)   

I use tighter tank tops...like the ones sold in the intimate stores/departments under almost every top and I've started to buy pants that either right at or above Penelope.  I believe the tighter and more secure clothing keep my entire accessory from moving as much, which in return seems to prevent leakage/sores. 

I've started running a bit...at least four times a week.  I'm really just doing it to lose weight, but in order for that to happen I need to really work on better eating habits!  smilewinkgrin   No one would ever know that this chubby butt can run over a mile and in a few weeks I should be up to two!  I really want a runner's body, so honestly this next week it's back to lite soups and deli sandwiches! shakehead   I may even over steam some veggies and start that up again.  Hmm.

Sorry I got off the subject there.  Let us know how your sore heals up.  I do know that frequent changing of the accessory will really help it heal.  I had a pretty sore area one time from a leakage that I changed my accessory every 3-4 days for a couple weeks until it was completely healed.  I know it gets expensive, but I would rather use the supplies that feel that itchy-stinging sensation that comes with the sores!

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 2/26/2010 11:06 PM (GMT -7)   
My plan is to change again tomorrow. I talked to the ostomy nurse and she recommended powder which I will try. I am anxious to keep running, though I have taken two days off. I am determined to prove that despite the last year I can still run 21 km. I know a little focused on outcome rather than process, but I guesse it is my way of fighting back.

I will let you know. Good luch with the running, it does feel so good. I know about that weigth thing. I am a little surprised at how quickly I have been gaining again. Although I am kind to myself, after years of no cheese or chocolate, I feel like my ostomy gives me a little right to enjoy what the food that goes into my body for a change. I have one tank top that I love to wear because it is long and tight, I am on the hunt though for more.

Thanks for your advice.

Sue
UC 2003 Ileostomy 2009

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/27/2010 7:16 AM (GMT -7)   

I also use the bra/tanks that have the actual bra built into the tight tank.  They're nice too.  Here I can find them at discount stores for $10-$20.  I really like them also b/c they keep the top of my accessory close to my tummy and it all stays pretty smoothed out.  Looking at me you would never know I have an ostomy...for the most part. wink

I've heard many people talk about the powder and how much they like it.  I've never used the powder, but am considering purchasing some of it just to have on hand.

Have a wonderful weekend!!!!

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 3/1/2010 8:24 AM (GMT -7)   
Please go see your surgeon right away. Its possible that its a condition called Pyderma Gangresa. It is a common systemic problem from Ulcerative Colitis and Chrons disease. If it is, then they will need to give you steroids or remicade to get it under control.

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/1/2010 11:26 AM (GMT -7)   
Liquid bandaid!!! The 3M no-sting. Best stuff ever!! Whenever I get skin break down or leakage and get a sore, I put about 3 coats of the liquid bandaid on, and within a few days, the skin is as good as new!!

-Allie
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 3/1/2010 1:38 PM (GMT -7)   
Thanks for all the suggestions. I did go to emerg yesterday, woke up in pain and thought it was good just to go get checked out. The Dr put me on antibiotics. Things seem to be settling down. He did say if it did not get better in a couple of days he would get the surgeon involved. I am hoping to have the jpouch operation in June, do you think this will impact that?

Sue
UC 2003, ileostomy 2009

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/2/2010 11:41 AM (GMT -7)   
OH!!!!!!!!! *smacks forehead* You meant...you were SORE around your stoma, not that you HAD a sore...wow.....I swear, I should have been blonde. LOL.

-Allie
www.oscartheostomy.blogspot.com
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 3/4/2010 8:01 PM (GMT -7)   

No Allison you were right, there was a sore right beside the stoma. 

Sue

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