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Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 2/26/2010 8:05 PM (GMT -7)   
yeah I always enjoy Summerstorm's hilarious accounts, and usually I canot come up one that tops her, till now
As some of you know, I am a two bag guy.  I have m,y colostoy bag with which I sometimes have some horrendous affairs.  But I also have a permanent indwelling supra pubic catheter.  That means a hole drilled in my lower abdomem into my bladder.  It is a painful condition about 24/7.  To aleviate the pain my Dr. has perscribed an antispasodic pill which turns my urine bright orange  (Think orange kool aid)  yesterday I was lying on my bed covered with a pristine white comforter.  After a bit I though I felt something damp around my ankles.  I called my wife and raised up in bed to see what was happening.  My leg bag (orange kool aid) had leaked and the entire lower part of the bed and my feet and ankles were ---you guessed it.  BRIGHT ORANGE.  It is a dye and resistant to clean up
 
Ralph
When there are no more choices, tha decision is easy!


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/26/2010 8:51 PM (GMT -7)   

First off, I like your saying about choices and decisions!!

Secondly, sorry you have orange ankles!  And I'm guessing an orange bed spread?  That's really a bummer.

A couple months after my surgery (so last spring) my husband and I took our son out of town for the afternoon.  I turned around to tend to our little man in his car seat and when I sat back down I smelled our lunch again!  (really, once I realized what it was I was super grossed out!!!!)  Nothing had actually 'leaked' yet b/c my accessory popped at the top of the seal so I didn't feel anything.  This was also at the point where I easily forgot about having Penelope and the fact that I had a bag of poo against my tummy wink   So, my husband and I sat in the car and tried to figure out where the smell was coming from and he asked if it was me!  How dare he!!  But once I checked, low and behold there was Penelope playing peek-a-boo!  yeah  

That was the first (and since then, last) time I had to change my accessory both in the car and in front of my husband.  smilewinkgrin

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/26/2010 9:17 PM (GMT -7)   
LOL ralph! thanks!
thats a great story, i am sooo not gonna try to top you on that one!

can you get the stains out? or are you doomed to be orange forever
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Sue030509
Regular Member


Date Joined Jun 2009
Total Posts : 39
   Posted 2/26/2010 11:10 PM (GMT -7)   
It is amazing where we can change our equipment. I remember leaving the hospital and thinking, if those nurses couldnt change it without getting poop everywhere, how am I going to change in it in times of crisis. Oh how we adapt.

Sue
UC 2003, Ileostomy 2009

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/27/2010 7:07 AM (GMT -7)   

Oh I know!  I believe we all go through adaptations and adjustments constantly.  For instance, I am now adjusting to my child wanting to be independent, and so while I work on my laptop he now sits at the table with his V-Tech laptop and works too smilewinkgrin   And he just relocated his home office from the dining room to his bedroom because Mickey Mouse Clubhouse is on!  He's so awesome!

I just changed my accessory last night b/c of some minor leakage that caused some serious itchiness and I'm just putting it out there that when I have a brand-spanking new accessory on I instantaneously in a good mood! yeah

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 2/27/2010 8:25 AM (GMT -7)   
Hey all - somewhat odd comment but there's a detergent I'm still using occasionally for stubborn stains, even though my daughters are 19 and 22. What is it?

LOL

Dreft!

Yes Dreft is amazing stuff! Takes every stain I dish at it, out of the fabric. Pricey though......

Bummer about the orange stain though.........glad you can find the humor in the situation though. That's half the battle. Here I'm always looking back at the toilet to see what I left behind, no pun intended. 9 out 10 times, there's something I need to wipe up or take care of. Sigh........
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/27/2010 8:56 AM (GMT -7)   

I LOVE Dreft!  My son is 2 and really is not making stains like he used to, but I keep Dreft stain remover stocked both in the bathroom and laundry room!  I use it for EVERYTHING! yeah

More recently I've started using the Clorox pen for whites and the Tide pen for colored clothing...I'm impressed with both, really...but oh how I love the Dreft! smilewinkgrin

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 2/27/2010 9:57 AM (GMT -7)   
Me too! I even like the scent.

I just buy the spray and wash bottle of Dreft, it's cheaper.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening


Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 2/27/2010 10:14 AM (GMT -7)   
the drug is pyridium.
got my feet clean, but not sure of the comforter. Thanks all Ralph
When there are no more choices, tha decision is easy!


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 2/27/2010 10:24 AM (GMT -7)   
Ralph - run out and buy some Dreft. Then head to your local laundry mat and use their commercial sized washers.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/27/2010 11:46 AM (GMT -7)   

I agree...we no longer use the detergent b/c it is super expensive, but the stain remover is AWESOME!!!!!!!!!!!  And the scent is so soft and comforting...LOVE IT! 

So, yep...invest in some Dreft products and see how it goes!  yeah

Good Luck!

smurf 


: )  Robin
 
29 year old Mommy of an amazing 2 year old and Wife for 3 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/27/2010 2:33 PM (GMT -7)   
ivory bar soap takes everything out too! although it might be along time to wash a comforter, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/28/2010 7:01 PM (GMT -7)   
Ralph, sorry to hear that happened...you did WANT to re-decorate, right?! Spring is around the corner, now you (or, your wife) have an excuse to go shopping!

Glad your feet aren't orange anymore:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


hvacchronie
Regular Member


Date Joined Oct 2009
Total Posts : 43
   Posted 3/1/2010 11:40 AM (GMT -7)   
I say just go for it and dye the whole thing orange!! Pillow shams too so it looks like it was on purpose!! That way, if it ever happens again, no biggie!!! Hmmm, maybe some tropical accessories around the room to tie it all together? (BTW, this is Marcie replying not Tony;)

More than once we smelled something and thought his pouch leaked but turned out to be our youngest!! Little guy farts ALOT! Big ol' man farts! He's only 4 but sounds like full grown man after a burrito eatin' contest!LOL

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 3/1/2010 12:27 PM (GMT -7)   
I am laughing at the redecorating comments. Totally unrelated but this incident reminds me of when our neighbor wanted to soak stains on her kitchen counters with a paste of water and Comet cleanser. Well she ruined them! Walked away for quite a while and shouldn't have left the cleanser on the formica. Anyway, she likes to joke and tell people that's how she got new counter tops!
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening


Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 3/2/2010 6:57 PM (GMT -7)   
Strangly It did happen again. This time it was my fault. I cross my ankles when I am lying down. and apparently kicked the valve open. Emptied the whole bag. Comforter (another one) blanket sheet, and carpet. Wht SWMBO had to say about that was not for delicate ears. Like mine. Thanks all


Ralph
When there are no more choices, tha decision is easy!


Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 3/2/2010 6:58 PM (GMT -7)   
Strangly It did happen again. This time it was my fault. I cross my ankles when I am lying down. and apparently kicked the valve open. Emptied the whole bag. Comforter (another one) blanket sheet, and carpet. Wht SWMBO had to say about that was not for delicate ears. Like mine. Thanks all


Ralph
When there are no more choices, tha decision is easy!

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