j pouch and gas pains and kidney stones

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Regular Member

Date Joined Apr 2009
Total Posts : 55
   Posted 3/1/2010 9:14 AM (GMT -7)   
Hi Everyone
My son is almost four months past his reveral. He had the three step jpouch surgery. Lately he has been having pretty significant gas pains and I am wondering if anyone else here expereiences this is and if so, what do you do for them? they can be pretty debilitating to him. He also developed kidney stones last week, prob due to dehydration. anyone been this route? Any suggestions for avoiding them becoming a chronic problem? Also interested in knowing if you think VSL#3 really can help fend off pouchitis. He hasn't had any pouchitis, but all his docs seem to be unwilling to say it makes a difference. the most they will say is that is can't do any harm. would really like to hear what others are thinking and doing abou these annoying problems. thanks, Maria

Forum Moderator

Date Joined Feb 2006
Total Posts : 5697
   Posted 3/1/2010 9:18 AM (GMT -7)   
I've had my jpouch for 9 years. I've only had pouchitis once. I take a probiotic every day, Risaquad. I don't think you need to invest in an expensive probiotic like VSL unless he was to have chronic PI. There are lots of probiotics out there to choose from and you will get hundreds of recommendations. As for kidney stones, yes dehydration can cause them. Remember that thousands of people get kidney stones and most of them have a colon. He will need to be careful to stay hydrated to prevent further stones but he could just be one of those who is prone to them. It's interesting that he is getting severe gas pains this far out from surgery. I recommend that he keep a food diary to see if he can chart what is bothering him. For me, in the early days, wheat was a huge problem so I eliminated it for about 6 weeks. I had to read labels carefully as wheat was in everything! Other foods that could trigger more gas are dairy, carbonation, legumes, etc. A good probiotic can reduce gas so another good reason to add one. When he is in pain have him walk! Lots of moving around will help to move the gas.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Apr 2009
Total Posts : 55
   Posted 3/1/2010 12:22 PM (GMT -7)   
thanks - i didn't know the probiotic could help with gas. i will pass that on to him. thanks for all your knowledge that you share with us.
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