Hi all, My name is Colby and I am a new member. I am about
at my wit's end. I was diagnosed with a horrible case of UC in 2001 when I was 20 years old. I had to have my colon removed and get a J-Pouch the next year after tons of different medicines tried to reduce inflammation in colon. My life has been utter hell afterward. I go to the bathroom 15 to 20 times per day and have horrible, severe anal pain in my butt (butthole, sorry). We have tried EVERYTHING known to man to help with the frequency of bowel movements and the horrible anal pain. The only thing that worked is narcotic pain medicines. I have become tolerant to them and do not want to be on them any longer anyway. We have had to schedule for me to receive a Nerve Stimulator Implant, also called a Neuro-Stim, for the pain. I do not want it at all. I am 27 and do not want to have an implant in me and have to carry around a remote that turns the device on and off when I get pain. It has all been awful.
The ray of light has come in that I heard about
the Pudendal Nerve and how it can be "entrapped" or otherwise damaged during surgeries in and around the pelvic and anal areas (such as the colectomy and J-pouch) surgeries. Also, many websites I have researched state IDENTICAL problems that I have, that result from Pudendal Nerve damage. Does anyone know anything about
this? Does anyone have any help they can give me? The implant surgery is in Denver at the end of this month with the famous Dr. Giancarlo Barolat. He is unsure if it will even work to begin with. Even if it does, the pain medicine will stop and i will begin to have twenty or more bowel movements per day again. (The narcotic pain medicines helped with the pain and also reduced the number of bowel movements I have had per day to around 10, cut in half!).
Please if anyone can help I would be much appreciated. My email also is Email addy removed
. Thank you so much. Oh lastly, I have seen all the "big guns" for this horrible disease and procedures: Bo Shen, Cleveland Clinic, Ohio; Robert Wexner, Cleveland Clinic, Westin, FL; Andrej Ukleja, Cleveland Clinic, Westin, FL; Contacting Dr. Renney, Texas, about
the Pudendal Nerve issues.
Thank you all again. I also truly hope everyone finds relief in some way(s).
ColbyHi Colby, it's best not to put your email address in a post on any public forum otherwise you're inviting spammers to come along and harvest it. If you add it to your profile, people can email you from there... Shaz
Post Edited By Moderator (Shaz032) : 3/9/2010 3:59:23 AM (GMT-7)