Pam I would be super annoyed as well, and my thought is that if they do not use the proper vocabulary are they really compitent enough to be my nurse?
I have had two experiences from two different surgeries where nurses were extremely insensative and minimized the seriousness of my situation. And you know what? A small portion of my motivation to specialize in chronic illness as a licesed therapist is so that I can go back to this hospital and lobby for specialized mental health training for nurses. I'm sure we can all agree that any time you have an emergency surgery it can be traumatic and very difficult to handle emotionally.
I did have a few extremely amazing nurses as well, and they deserve a gold star for being awesome!
The nurses at my hospital know so little about
ostomy care. They would try to help me in the early days and I was better at changing things than they were. They would give up frustrated within minutes. Most of my nurses were very nice, but some of them were very unsupportive. The youngest nurses were the nicest, while the older ones were not always very nice to me. I don't know if it's coincidence, a difference in training, or just getting burned out after years of working. I was in for so long (about
6 weeks) that I really know some of the nurses pretty well. After that long, they become a little more concerned about
making sure I am ok.
I have home nurses now and one of them is always asking "did you have a bowel movement today?" and I say "I have an ostomy". He forgets every single time. It's a little annoying because if he can't even remember why he's here, how useful is he?
26 year old female
Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
4/10 Going to try to go back to the J-Pouch again
Imodium (8/day), Questran (3/day), TPN 12 hours/day, IV fluids 4 hours/day