Surgery set for April 20

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Dave D
Regular Member

Date Joined Aug 2005
Total Posts : 404
   Posted 3/10/2010 7:54 AM (GMT -6)   
I've had IBD for 30 years and three temporary ostomies, the last of which was in 2005. Now it's time to do away with my J-Pouch for good.
My questions are: What new has come on the scene as far as appliances are concerned. How about swimming or even hot tubs? Possible?
What about stoma placement height? I'm 6'2' and am 30 #'s overweight due to my last Prednisone blast, and hoping that will come off now. Please anybody?
Dave D
Grandpa Dave is 70.
IBD since 1977
Perforation and resection 1993
Diagnosed as Ulcerative Colitis 1994
Received J-Pouch 1997
Diagnosed as Chron's 2004
Redo, resection, and remove camera capsule 2005
Unsucessfully tried LDN 2007
Contracted Scleritis of the Eye 2008
Four Grandkids
Older than dirt

Veteran Member

Date Joined Jun 2009
Total Posts : 985
   Posted 3/10/2010 8:21 AM (GMT -6)   
I can't go swimming or in hot tubs but my stoma is particularly pissy and difficult (my ostomy nurse nicknamed it Little Bast*** and she is the sweetest most soft spoken woman who you could never imagine using a word like that). I have been told that most people can do those things so i would think you will be able to. As far as placement, the ostomy nurse will mark you in the best spot so wear your normal clothing on that day. My first was on the lower right and where the nurse marked me. The one I have now is very high on the left (higher than the waist and very annoying). That one wasn't marked and was placed wherever the surgeon could during an emergency surgery.
Good luck!
26 year old female
Diagnosed with unspecified UC 11/08
Asacol, Prednisone, 3 infusions of Remicade with no success
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
3/16/10 Going to try to go back to the J-Pouch again
Imodium (8/day), Questran (3/day), TPN 12 hours/day, IV fluids 4 hours/day

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 3/10/2010 10:24 AM (GMT -6)   
we have a hot tub and a pool, so we go alot, so yeah its fine to go swimming. once you get your system down you shouldnt have a problem.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 3/11/2010 6:50 AM (GMT -6)   
I swim every week with no problems, as summer said once you have your system down there should be nothing stopping you. I was so nervous the first time I jumped into a swimming pool after surgery but it was great. I highly recommend it :-). Good luck

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 3/11/2010 6:53 AM (GMT -6)   
well, I've had ileos since 2000 and I don't think there are any 'visible' changes to appliances...they may have changed formulas and things but I don't notice anything big.

I use a Sure Seal which is great for protecting the wafer and the tape part from getting wet...and for me it extends wear you might want to try one for swimming!

I'll be thinking of you on April 20th!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

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