Crohns and adhesions and fistulas have got really bad again recently and I just want them to take the affected bits out but the catch 22 is that I've only got about 90cm of small bowel left and THATS IT! And the surgeons/doctors reckon that if they take any more out I will have to live with permanent TPN as I wont have enough intestine to absorb nutrients. But am fed up with all these meds they keep shoving down me that dont seem to make any difference.
Don't know whether to suffer the pain and illness and constant trial and error of new drugs or just admit defeat and get them to take it out and have 12hrs a day on TPN?!
Anyone had similar experiences with small bowel syndrome and TPN??
Thanks for any help or advice anyone has to give
CD for 15 Years, Ileostomy for 9.
7 Re-sections since then and just started on Methotrexate!