I HAVE BEEN THERE!! Hang in. I was devastated when I found out I had a fistula and needed a drain tube. I'm not sure if this is all the same but it sounds so much like what I had.
After my take down, we thought everything was healed up until I started getting BAD pain three months later. We did a contrast and found the fistula... I had a drain tube placed and was told I would have it for two weeks at the most! A MONTH LATER- they took it out (because I hated it so much) and we decided to have "corrective" surgery because the tube didn't help the fistula heal. That surgery was SO invasive. I was swollen for a long time afterward because of the adhesions he found and "scraped" off!! It has been a month since that last surgery and I'm am feeling so much better- emotionally and physically.
All I can say is roll with the punches. It was so hard. I still have bad days but I am working it out. Things will get better in time. And once there is no pain... life is sweet!
UC (Pancolitis... 90%!) December 2001
Upper GI Ulcer (2006)
J-Pouch May 2009/ Reversal November 2009/ Fistula correction March 2010
Check out my blog: shlookshlies.blogspot.com/