I have dealth with chronic Pouchitis for 9 years with the last bout so bad that I ended up in the hosptial and on remicade. No, I do not have Chrons-all tests have ruled that out. I also do not have a rectal cuff. In the past I have done very well on Pentassa. When that stoped working I used xifacan. When that stopped working I used Pentassa, xifacan and canassa and sometimes cortenema all at once. The remi did get me back into remission but I had a horrible reaction to it. That was last April but have now been in remission with canassa, 2-4 packets of VSL#3D, every so often cortenema, fish oil, tumeric, and manuka honey. I'm thinking of adding L-gutamine. I also modified my diet to more raw/plant base and cut out a lot of sugar, bread and milk products. Also, working with my doctor to up my vit D to around 60. They did a study where they found more vit D=less inflamation. Very fustrating since you have this surgery to get off some of these drugs.
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000, Emergency j-pouch surgery
Multiple complications, J-pouch redo- July 3, 2001.
Take down-Jan 3, 2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Gall bladder out-Oct 1997
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?
Post Edited (susans53) : 1/17/2011 5:43:01 PM (GMT-7)