I'm back from my post op appt with my surgeon, 3 weeks after my proctocolectomy...he says I'm doing great! He's really pleased with my recovery and said my colon was the worst he's ever seen! GOOD RIDDANCE!!! He says I have no restrictions on what I can do, which is INSANE to me just 3 weeks after surgery. He gave me the ok to to back to work, but I am not strong enough to dance in 4 shows a day yet. I will give myself a few weeks to gain back my strength and also gain some weight (since I was so sick before the surgery...I'm like a skeleton...gross), and then it's off to work I go!! Wow. These 3 weeks have really gone fast. I'm tapering off my pred too--awesome! I've been on 40 for like 10 months and now I'm down to 15! Hooray!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently on:15 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention).