So I'll probably be over here a lot more now that I just had the first of three surgeries for the J-pouch. Had UC for five years. My surgery was just last week at the Cleveland Clinic. I'm overwhelmed by the whole pouch thing and I need some help from veterans. I need to order some supplies by I'm not 100 percent sure what all I need. I know I want opaque pouches and I like the wide openings for drainage. However, I don't like Hollister's lock-n-roll closures I prefer Coloplast's ones that have the velcro tabs you pull over. Also, I don't know if I should order pouches with filters or not. Do they smell more? So help me I think I can smell the filtered one that I'm wearing and I hate that. And I'm leaning toward the two-piece appliances.
Sorry about all the babbling, but I guess my questions are:
1) Any suggestions on pouches?
2) What about the filters?
3) What all do I need to order for 30 days?
Thanks so much for any replies.
Diagnosed with UC in Feb. 2005
Colazal (9 a day)
Remicade - stopped working after about two years
Humira - started 2/10