Had my takedown last week

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Veteran Member

Date Joined Jun 2009
Total Posts : 985
   Posted 4/9/2010 9:30 AM (GMT -7)   
I haven't been updating. I was in the hospital for 15 days, as I had kidney failure for the third time. This time I was in the hospital from Fri-Sun and then my levels were normal. By Monday morning, I was already in trouble again, even though I had been on fluids and TPN overnight. That's just how extreme my output from the ostomy was. My surgeon said he presented my case and conferences and other doctors didn't even believe the volume I was putting out. My surgeon was out of town and his partner was going to do the takedown, but my surgeon came home early to do it. I was in a week waiting for it and then a week after the surgery. He was draining the pouch with a catheter tube every 4 hours the first couple of days as he wanted to be sure the fistula wouldn't come back if the pouch filled up too much or I had to strain at all. I had no urge to go at all the first few days. I am going normally now--just ALL the time--like every hour day and night. I hope my dehydration issues get better with the ostomy gone now.
My takedown surgery took about 4.5 hours. it's supposed to be a quick surgery but they're always longer and more complicated for me. The pain is worse this time just because I've been opened up 5 times recently and there is just so much scar tissue. The skin around where the ostomy was is still very irritated and painful, though my doctor did cut some of the really damaged skin out. My incision was left open in 3 spots so I have to pack the wounds every day. I'm on the TPN for at least a couple of weeks, because even though I've been on it for 6-7 weeks, my nutrition levels are still "marginal"
I can't wait to heal and start living a normal life again and enjoying my son (he just turned 1 yesterday!)
27 year old female
Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Attempted Fistula Repair(couldn't find it)
3/30/10 Takedown again
Imodium as needed, Questran (3/day), TPN 12 hours/day. Hoping the fistula doesn't return!

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 4/9/2010 10:52 AM (GMT -7)   
Congratulations on your son's birthday!! That a great age:)

Glad you've had your reversal and you are home...it's always easier to recover at in you own space! I am sorry you've had to go through so much this far...now for healing:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Forum Moderator

Date Joined Dec 2008
Total Posts : 15677
   Posted 4/9/2010 12:59 PM (GMT -7)   
Thanks for the update. I have been thinking about you, hoping this surgery was easier than the last but it sounds like you have had quite a bit of obstacles. I hope you start feeling better soon!!
March 2007: Diagnosed with mild proctitis - Treated with Canasa (as needed)
August 08 - December 08: Relapse & Anemic - Treated with Asacol (9/day) + Canasa 2x/day
January 09 - December 09: Remission!! Canasa nightly + Asacol (9/day) + Probiotics + Iron
December 09 - January 10: Flare :(
Current: 10mg prednisone, 9 Asacol, Canasa

Regular Member

Date Joined May 2008
Total Posts : 166
   Posted 4/10/2010 9:52 AM (GMT -7)   
Hi Pam

Thanks for the update. I hope that things now start going in the right direction for you!

Good luck!

I'll be having my takedown on Thursday - cant wait to get it over with!
Diag proctitis 97 - major flare and extension to left sided colitis Aug 2006 - present.

I have bled every day since Aug 2006 (I quit smoking in June 2006).

Imuran (Azathioprine) game me liver damage. LDN no luck.  Asacol and mesalazine enemas - seemed to make worse. Lots of Prednisone :(  No luck on drugs!

JPouch, total colectomy and ileostomy (part 1) completed Jan 2010 :)

UC no more!!!

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